tag:blogger.com,1999:blog-68099500033943928482024-02-08T14:27:39.926-05:00You're not crazy. you're sickJennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.comBlogger127125tag:blogger.com,1999:blog-6809950003394392848.post-38024374566039477452020-05-31T19:18:00.000-04:002020-05-31T19:18:36.873-04:00New posts coming soon!I am a terrible blogger. I haven't written in far too long. I will be posting soon. Keep an eye out!!!<div>In the meantime, here is a cute pic of my beagles who are trying not to look as guilty as they are. </div><div>Hugs!!</div><div><br /></div><div>Jenn</div><div><br /></div><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-drdg-6Ogxio/XtQ6aHKV-hI/AAAAAAAAkfI/5TjSIXxpTd8eKn_KoYNmpEYhKTlBkhPdwCK4BGAsYHg/IMG_1225.HEIC" style="margin-left: auto; margin-right: auto;"><img alt="Connor & Bella Bea" border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://1.bp.blogspot.com/-drdg-6Ogxio/XtQ6aHKV-hI/AAAAAAAAkfI/5TjSIXxpTd8eKn_KoYNmpEYhKTlBkhPdwCK4BGAsYHg/w240-h320/IMG_1225.HEIC" title="Connor & Bella Bea" width="240" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;">Connor & Bella Bea<br /></td></tr></tbody></table><div><br /></div><div><br /></div><div><br /></div><div><br /></div>Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com0tag:blogger.com,1999:blog-6809950003394392848.post-57214591038810683582019-12-25T10:51:00.000-05:002019-12-25T10:51:12.519-05:00Merry Christmas and Happy Hanukkah <div class="separator" style="clear: both; text-align: center;">
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Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com0tag:blogger.com,1999:blog-6809950003394392848.post-85000477452932984452019-07-26T20:58:00.001-04:002019-07-26T21:07:44.165-04:00Why do I even bother with new testing?<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
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<tr><td class="tr-caption" style="text-align: center;">You've been warned!</td></tr>
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<span style="font-family: "helvetica neue" , "arial" , "helvetica" , sans-serif;">We've been home for a few days now after being at Cleveland Clinic for more testing. This time they were looking for POTS <a href="https://my.clevelandclinic.org/health/diseases/16560-postural-orthostatic-tachycardia-syndrome-pots">(Postural Orthostatic Tachycardia Syndrome)</a>. According to the Cleveland Clinic, <span style="background-color: white;">Postural orthostatic tachycardia syndrome (POTS) is a condition that affects circulation (blood flow). POTS is a form of orthostatic intolerance, the development of symptoms that come on when standing up from a reclining position, and that may be relieved by sitting or lying back down. The primary symptom of an orthostatic intolerance is lightheadedness, fainting, and an uncomfortable, rapid increase in heartbeat.</span></span><br />
<span style="font-family: "helvetica neue" , "arial" , "helvetica" , sans-serif;"><span style="background-color: white;">This also causes heat/cold intolerance, severe fatigue, pain, sweating like mad, digestive issues and many more. POTS would explain all my symptoms. </span></span><span style="background-color: white; font-family: "helvetica neue" , "arial" , "helvetica" , sans-serif;">I was hopeful that this will be the answer I have been looking for for many years. But yet cautious because I did not want to be let down again. </span><span style="background-color: white; font-family: "helvetica neue" , "arial" , "helvetica" , sans-serif;">I had a full day of testing. </span><a href="https://my.clevelandclinic.org/health/diagnostics/16398-quantitative-sudomotor-axon-reflex-test-qsart" style="font-family: "helvetica neue", arial, helvetica, sans-serif;">QSART</a><span style="background-color: white; font-family: "helvetica neue" , "arial" , "helvetica" , sans-serif;">, </span><a href="https://my.clevelandclinic.org/health/diagnostics/17043-tilt-table-test" style="font-family: "helvetica neue", arial, helvetica, sans-serif;">Tilt Table</a><span style="background-color: white; font-family: "helvetica neue" , "arial" , "helvetica" , sans-serif;">, </span><a href="https://my.clevelandclinic.org/health/diagnostics/16953-electrocardiogram-ekg" style="font-family: "helvetica neue", arial, helvetica, sans-serif;">ECG</a><span style="background-color: white; font-family: "helvetica neue" , "arial" , "helvetica" , sans-serif;">, </span><a href="https://my.clevelandclinic.org/health/diagnostics/16947-echocardiogram" style="font-family: "helvetica neue", arial, helvetica, sans-serif;">Echo</a><span style="background-color: white; font-family: "helvetica neue" , "arial" , "helvetica" , sans-serif;"> and</span><br />
<a href="http://www.dantest.com/dtr_ans.htm" style="font-family: "helvetica neue", arial, helvetica, sans-serif;">Cardiovagal ANS</a><span style="background-color: white; font-family: "helvetica neue" , "arial" , "helvetica" , sans-serif;">. I was so exhausted by the time for the tilt table test that I could hardly stay awake.</span><br />
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<span style="font-family: "helvetica neue" , "arial" , "helvetica" , sans-serif;"><span style="background-color: white;">And just what I predicted, the results for the Echo and Tilt Table are negative for POTS. On one hand, that's great that I have a healthy heart. It truly is. But, on the other hand, I am so sick and tired of doing this dance. Dance of having a false sense of getting closer to what is actually wrong with me, getting my hopes up, then be utterly disappointed and back to square one. It's torturous. Causes such depression and even self loathing. Seriously, I hate myself when I get negative or normal results. It makes me think "Maybe they are right. It is all in my head and there's nothing wrong". I feel useless, stupid and broken. I can't work. I can't thoroughly clean my house. I can't drive. I've missed functions that are outside because of the heat. I've missed functions because the pain and fatigue is too bad. And on the bad days, I can't get out of bed or need help walking 15 feet to the bathroom. </span></span><br />
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<span style="font-family: "helvetica neue" , "arial" , "helvetica" , sans-serif;"><span style="background-color: white;">So why do I keep agreeing to these tests knowing <b><u>NOTHING</u></b> will ever tell me exactly what is wrong with me? Ok yeah, some day maybe something will show. Ya know, <b><u>AFTER</u></b> I've had a disease associated stoke or heart attack. Or hey, maybe when I'm dead they will figure it out. Ok, Ok. I know I'm being a bit dramatic there but really, this is the angry thoughts that go through my head every time I hear nothing is found. I get pissed off. I yell, cuss and scream. I sob. I ugly cry. It's not pretty folks. I wanna say f**k it all. I'm never going to another doctor. I am never doing another test. I don't care if my arm is falling off. NO MORE TESTS!!</span></span><br />
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<span style="font-family: "helvetica neue" , "arial" , "helvetica" , sans-serif;"><span style="background-color: white;">Ok, I'm done feeling sorry for myself. I do feel better getting that out. Oh and sobbing like a fool earlier. That helps. As did the bag of Unwrapped Starburst Minis. But that's neither here or there. I think I go through this pain and disappointment every time because I carry a glimmer of hope that my actual diagnosis will be found. I want vindication that there is truly something wrong with me. I want to know if I'm going to progress so I can plan things. I want to give Hubby and the kids a peace of mind that mom is not going to keel over tomorrow or become a huge burden in 10 years. </span></span><span style="background-color: white; font-family: "helvetica neue" , "arial" , "helvetica" , sans-serif;">You would think that after 10+ years of searching for a diagnosis that I would be used to the idea of a normal test result and that the mystery will not be solved. </span><span style="background-color: white; font-family: "helvetica neue" , "arial" , "helvetica" , sans-serif;">To know what the future brings. Look, I do not want MS, Systemic Lupus or some horrible incurable disease. No one wants that. I just want an answer. I deserve at least that much. </span><br />
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<span style="font-family: "helvetica neue" , "arial" , "helvetica" , sans-serif;"><span style="background-color: white;">Hugs!!</span></span></div>
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<span style="font-family: "helvetica neue" , "arial" , "helvetica" , sans-serif;"><span style="background-color: white;">Jenn</span></span></div>
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<span style="font-family: "helvetica neue" , "arial" , "helvetica" , sans-serif;"><span style="background-color: white;">Wanna leave a comment but don't have GMAIL? Click...<a href="https://www.facebook.com/youarenotcrazy/posts/2355094637913882?__xts__[0]=68.ARAKOB33XCMHZKG68D_8vky6Eh4-ygqbBRF2ca4Dp0BosACWw0PPG2efXqnYoNA00vsjyJXvNGANzG6-khEzFOwH3dL-WMUS6-3KvdyWvFyAZ2F8jmmkataN9kvIvV4PGWLydw-ELXzpFD8ZX89SC9atfZmLLkX3UaFJdLl8Wq0jeVftsk5o3uJvroaHGrfQ1N0eMTkkyyiLrrm-gvpGtb3yhD9k9ETLCtC6Mn7-4DCXYZcQUPE-5g5ZnKJsa5p_mAvX9jQ4apmKqV2vjNl4zeTDhXCgUjFCVoq2RLy9Fz8mztYhxi9FGsho1N9fcSTRRbb0iHitCHXXhKHSsi-X7DHY6w&__tn__=-R">here</a>!</span></span></div>
Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com0tag:blogger.com,1999:blog-6809950003394392848.post-39175141696413270912019-06-27T22:01:00.015-04:002020-05-31T19:11:14.356-04:00Must Read Before You Buy Ohio Medical Marijuana...<span style="font-family: arial, helvetica, sans-serif;">Updated as of 5/31/2020</span><div><span style="font-family: arial, helvetica, sans-serif;"><br /></span></div><div><span style="font-family: arial, helvetica, sans-serif;">As you may know, from my other posts, I was finally able to obtain a medical marijuana (MM) card and visit a dispensary. What you don't know is all the limitations that were set by the state of Ohio regarding usage and forms. Check this out...</span><br />
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<span style="font-family: arial, helvetica, sans-serif;">"I'll just buy "plant material" (Bud) and make my own edibles with it."</span></div>
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<li><span style="font-family: arial, helvetica, sans-serif;">No, you cannot. It is illegal. Per Ohio Administrative Code (OAC) <a href="http://codes.ohio.gov/oac/3796:7-2-05">3796:7-2-05</a> (B) patients and caregivers shall not engage in the cultivation of medical marijuana or the manufacture of medical marijuana extract, unless authorized pursuant to rule blah blah blah and so on. The important part is what I have made bold and underlined. What this is saying is that you are not legally allowed to make edibles. Because when you make edibles the first thing you do is "decarboxylize" the plant material. This converts the THCA and CBDA to THC and CBD. (Click the link for more information on <a href="https://www.leafly.com/news/cannabis-101/what-is-decarboxylation">decarboxylation</a>) In essence, you are "manufacturing medical marijuana extract". Of course this applies to all available forms of MM.</span></li>
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<tr><td class="tr-caption" style="text-align: center;">I bet those are some damn good brownies!</td></tr>
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<span style="font-family: arial, helvetica, sans-serif;">"I can roll up a joint or use my bowl/pipe to smoke it."</span></div>
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<li><span style="font-family: arial, helvetica, sans-serif;">No, you cannot. It is illegal. Per OAC <a href="http://codes.ohio.gov/oac/3796%3A8-2" target="_blank">3796:8-2 (B) (1) (2)</a> The smoking or combustion of MM is prohibited. Meaning, you can not burn the plant material and smoke it. The word "Combustion" is really important. </span></li>
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<tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-HN730kcQxyo/XRVdu531dVI/AAAAAAAAfNo/DY5l-lS2YQMnACvNvG2rueyyLPzZ_CDhACLcBGAs/s1600/tom%2Band%2Bjerry.jpg" style="margin-left: auto; margin-right: auto;"><span style="color: black;"><img border="0" data-original-height="270" data-original-width="480" height="180" src="https://1.bp.blogspot.com/-HN730kcQxyo/XRVdu531dVI/AAAAAAAAfNo/DY5l-lS2YQMnACvNvG2rueyyLPzZ_CDhACLcBGAs/s320/tom%2Band%2Bjerry.jpg" width="320" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Tom and Jerry will have to go back trying to kill each other.</td></tr>
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<span style="font-family: arial, helvetica, sans-serif;">"I can buy any device that is a "vape" to vaporize my MM."</span></div>
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<li><span style="font-family: arial, helvetica, sans-serif;">Sorry. Again, this is a no. You have to be very careful which device you purchase. You have to avoid "vapes" that cause conduction. (Conduction is basically burning the plant material with coils or open flame) OAC <a href="http://codes.ohio.gov/oac/3796%3A8-2">3796:8-2 (B)(1)(2)</a> talks specifically about this. Beware! Just because it is called a "vape" doesn't mean it's a legal one. For instance...</span></li>
<li><span style="font-family: arial, helvetica, sans-serif;">This one is called Ooze Drought Dry Herb Vaporizer. This one is <b><u>LEGAL</u></b> to use. </span></li>
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<tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-6CvpVPUhqg8/XRVZUyhYFeI/AAAAAAAAfNI/5zx7r9zOqk0HBTDSFTyxy5PPhFAx6SPjQCLcBGAs/s1600/ooze%2Bdrought.jpg" style="margin-left: auto; margin-right: auto;"><span style="color: black;"><img border="0" data-original-height="530" data-original-width="630" height="269" src="https://1.bp.blogspot.com/-6CvpVPUhqg8/XRVZUyhYFeI/AAAAAAAAfNI/5zx7r9zOqk0HBTDSFTyxy5PPhFAx6SPjQCLcBGAs/s320/ooze%2Bdrought.jpg" width="320" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Ooze Drought Dry Herb Vaporizer</td></tr>
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<li><span style="font-family: arial, helvetica, sans-serif;"><span style="font-family: arial, helvetica, sans-serif;">This one is called Ooze Duplex. This one is <b><u>ILLEGAL</u></b> to use with plant material. </span>However, you are legally allowed to use this one with vape oil and wax.</span></li>
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<tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-101haz-ShPU/XRVZuKSbXjI/AAAAAAAAfNQ/Mg027dYSAn4oGOHx4Wd3mBfQIoKWwfU0gCLcBGAs/s1600/Ooze%2BDuplex.jpg" style="margin-left: auto; margin-right: auto;"><span style="color: black;"><img border="0" data-original-height="720" data-original-width="720" height="320" src="https://1.bp.blogspot.com/-101haz-ShPU/XRVZuKSbXjI/AAAAAAAAfNQ/Mg027dYSAn4oGOHx4Wd3mBfQIoKWwfU0gCLcBGAs/s320/Ooze%2BDuplex.jpg" width="320" /></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Ooze Duplex</td></tr>
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<li><span style="font-family: arial, helvetica, sans-serif;"><br />Here is the difference...</span></li>
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<a href="https://1.bp.blogspot.com/-LLo79fMxSKM/XRVasr42XQI/AAAAAAAAfNY/qD1-tgXTnj0sjDkHYLVRNz7Zd-qpFfjSgCLcBGAs/s1600/vape%2Bcoils.png" style="margin-left: 1em; margin-right: 1em;"><span style="color: black;"><img border="0" data-original-height="326" data-original-width="457" height="228" src="https://1.bp.blogspot.com/-LLo79fMxSKM/XRVasr42XQI/AAAAAAAAfNY/qD1-tgXTnj0sjDkHYLVRNz7Zd-qpFfjSgCLcBGAs/s320/vape%2Bcoils.png" width="320" /></span></a></div>
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<li><span style="font-family: arial, helvetica, sans-serif;">The one on the left heats (convection) up the plant material. Kinda like a crock pot. The one on the right heats (conduction) up the plant material too but it burns the plant material. That's a big no no! (Click this <a href="https://vapingdaily.com/what-is-vaping/convection-vs-conduction-in-vaporizers/" target="_blank">link</a> here for more information regarding conduction vs convection vapes.) </span></li>
<li><span style="font-family: arial, helvetica, sans-serif;">The easiest way to determine that you are buying the correct vape, simply look at the red arrow above. See how it looks like little coils and the one on the left is has no coil looking thingies (technical term) but a well with holes? That's how you determine it. </span></li>
<li><span style="font-family: arial, helvetica, sans-serif;">I also look at if the temperature settings can be changed. Any where from 250℉ to 420℉. (Temp setting could go higher but I thought 420℉ was appropriate.)</span></li>
<li><span style="font-family: arial, helvetica, sans-serif;">Some websites will even have combustion or convection in the product description.</span></li>
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<span style="font-family: arial, helvetica, sans-serif;">"Many different types of edibles are available right now for me to buy."</span></div>
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<li><font face="arial, helvetica, sans-serif">Update! Yes there are several types of edibles that you can buy now at the dispensaries. From caramels, chocolate, gummies, infused honey sticks, a breakfast bar and granola. Still a bit pricey but have come down a bit in the past few months. </font></li><li><font face="arial, helvetica, sans-serif">Example: Terrasanna Dispensary in Springfield, Ohio, </font></li><ul><li><font face="arial, helvetica, sans-serif">Wana brand 10:1 (100mg CBD/10mg THC) Strawberry Gummies 10 pack is $45.00. </font></li><li><font face="arial, helvetica, sans-serif">Buckeye Relief brand 1:1 (100mg CBD/100mg THC) Chocolate 10 pack for $55</font></li></ul>
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<span style="font-family: arial, helvetica, sans-serif;">"I can have my MM on me/vape it at the Social Security Office for my SSI."</span></div>
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<li><span style="font-family: arial, helvetica, sans-serif;">No, you cannot. This is illegal. Per Ohio <a href="http://codes.ohio.gov/oac/3796:7-2-05">OAC 3796:7-2-05 (H) and (I)</a> medical marijuana shall <b><u>not</u></b> be possessed or administered on federal property or in federal buildings. Medical marijuana shall <b><u>not</u></b> be possessed or administered at any public or private place where medical marijuana is prohibited. Watch out for those signs!</span></li>
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<span style="font-family: arial, helvetica, sans-serif;">Few other things that you need to know:</span></div>
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<li><span style="font-family: arial, helvetica, sans-serif;">Be sure not to drive your tractless trolley when under the influence. Seriously, it does specify the tractless trolley. <a href="http://codes.ohio.gov/oac/3796:7-2-05">OAC 3796:7-2-05 (J)</a></span></li>
<li><span style="font-family: arial, helvetica, sans-serif;">Keep your card with your MM at all times when out and about. </span></li>
<li><span style="font-family: arial, helvetica, sans-serif;">Please keep your MM out of reach of children and pets. Including teenagers! Best thing to do is buy a lock box or small gun safe to keep it in. </span></li>
<li><span style="font-family: arial, helvetica, sans-serif;">You can be fired from your job if you using MM. Since marijuana is still illegal federally, you are not protected.</span></li>
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<span style="font-family: arial, helvetica, sans-serif;">Oh, that reminds me of one more thing:</span></div>
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<span style="font-family: arial, helvetica, sans-serif;">"I have my Carry and Conceal Gun License and my MM Card."</span></div>
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<li><span style="font-family: arial, helvetica, sans-serif;">Sorry, you have to give up one or the other. Federally, marijuana is a Schedule 1 drug (Schedule 1 drugs are LSD, ecstasy, peyote and the evil marijuana) although in Ohio, marijuana is a Schedule 2 according to <a href="http://codes.ohio.gov/orc/3796.01v2">ORC 3796.01</a>. On the ATF application that you need to complete for a CCW, a question appears as this: "<a href="https://www.atf.gov/file/61506/download">Are you an unlawful user of, or addicted to, marijuana or any depressant, stimulant, narcotic drug, or any other controlled substance?Warning: The use or possession of marijuana remains unlawful under Federal law regardless of whether it has been legalizedor decriminalized for medicinal or recreational purposes in the state where you reside</a>. " This is where it gets tricky. You are not using MM "unlawfully" in the State of Ohio but federally marijuana is still illegal. Shelby County Sheriff John Lehart, who is also a sitting member of the Ohio Medical Marijuana Advisory Committee, has pointed out this problem. "“The issue is, you can have a law-abiding citizen that had a concealed carry (permit,) and then they get medical marijuana,” Lenhart said. “If they get in trouble, they could be arrested. We could put a law-abiding citizen in conflict with the rules.”. To read more on this, click <a href="https://www.cleveland.com/open/2019/02/ohio-concealed-permit-carriers-who-are-medical-marijuana-patients-could-be-breaking-law-sheriff.html">here</a>. </span></li>
<li><span style="font-family: arial, helvetica, sans-serif;">Currently there is a lawsuit filed against President Trump by a MM card holder who wants to maintain their right to the 2nd Amendment. Huffington Post article <a href="https://www.huffpost.com/entry/medical-marijuana-guns_n_5bf4572de4b0771fb6b33319">here</a>.</span></li>
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<span style="font-family: arial, helvetica, sans-serif;">I know, I know...</span></div>
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<span style="font-family: arial, helvetica, sans-serif;">I was surprised to learn about these laws and of course I am quite disappointed on some of them. But laws are always changing. Besides, what you do in your own home is your business. 😉</span></div>
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<span style="font-family: arial, helvetica, sans-serif;">Hugs!!</span></div>
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<span style="font-family: arial, helvetica, sans-serif;">Jenn</span></div>
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<span style="font-family: arial, helvetica, sans-serif;">Wanna leave a comment and don't have GMAIL? Click...<a href="https://www.facebook.com/youarenotcrazy/posts/2305514136205266?__xts__[0]=68.ARC02bdOw2hQjNhV3jqNU0mqeau_cCDYYmi7wjTI538ldQVNpLbervWlE18PmKEouaj-qR8eYNrRDJWCmRGjdmSUqO0MWzjzP9PaEpZiTgyVLyMQ4flx4IUGz6swKYj48NZm1iR-objLlGsRwAberwdSy8-h9_mCcxOtzpizH2q65cmb_MHnAtEQ8ak5pTrb6Xrv3aMvM7h7e2Ahk9DeXcFnp91zRRiEDcZWh8_iNVP5T3xscFZXcrzO7Ek0jo8zdH0GRFuoMzWQdGTW4oSGv4ERpuuF9w-cbzny2ckqj_ENlapbCnEZVP4VaiqSPkVLYM5A-mWT3BgFNjPYtkmLqa51JQ&__tn__=-R">here</a>!</span></div>
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<span style="font-family: arial, helvetica, sans-serif;">Also, I am in no way being compensated for the Ooze products that I have shown above or any of the links that I have posted. I used the Ooze Drought because my cousin, <a href="http://jennisguts.blogspot.com/">who also blogs</a>, has the Ooze Drought. I wish I was compensated!😉</span></div>
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</div>Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com1tag:blogger.com,1999:blog-6809950003394392848.post-35093724872455899512019-06-07T19:43:00.001-04:002019-06-09T13:24:54.157-04:00So, I found a lump in my breast...You read that right, I found a lump in my left breast. With everything else I have going, this is the last thing that I need. But it has always been said...
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He must! What other possible answer could it be? Fighting for 10 years wondering what truly is wrong with me, losing my ability to work and drive. Hell, why not throw in a lump in my breast for shits and giggles?!</div>
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<span style="font-family: inherit;">But first... </span></div>
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<span style="font-family: inherit;">*placing soap box</span><br />
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<span style="font-family: inherit;">Ladies, we need be performing self breast exams at the very least once a month. Get to know the feel of your breasts. It's very important. Medical professionals are now saying that young women do not need to do this. Per American Cancer Society... <span style="background-color: white; color: #1e1e23;"><span style="text-decoration: underline;"><a href="https://www.cancer.org/cancer/breast-cancer/frequently-asked-questions-about-the-american-cancer-society-new-breast-cancer-screening-guideline.html" target="_blank">Evidence does not show that regular breast self-exams help reduce deaths from breast cancer. However, it is very important for women to be aware of how their breasts normally look and feel and to report any changes to a health care provider right away. This is especially important if a woman notices a breast change at some point in between her regular mammograms</a></span>.</span><span style="background-color: white; color: #1e1e23;"> </span><span style="background-color: white; color: #1e1e23;">So, let me get this straight. You no longer need to perform a self breast exam but you need to know the "look and feel"?? Kinda like in Alabama, you can have an abortion as long as you DO NOT know you're pregnant. (I am not even going to go there) How the hell are you going to know if you have a lump if you're not doing exams? </span>As a nurse and a woman, I call bullshit! Do the breast exam. No need to be embarrassed or afraid. Millions of women do it every day. Perform it privately like when no one is home or when in the shower. It's ok. It could save your life! If you don't know or unsure you are doing it correctly, take a look at this <a href="https://www.nationalbreastcancer.org/breast-self-exam" target="_blank">site</a>.</span><span style="font-family: inherit;">
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<span style="font-family: inherit;">This is my journey...</span><br />
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<span style="font-family: inherit;">Tuesday May 14th:</span></div>
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<li><span style="font-family: inherit;">I started to feel this burning pain in my left breast. I thought it might be just irritated skin from the beagles playing on me. The burning intensified throughout the day. I decided to do a self breast exam. I felt this dime sized lump in my left breast just under the areola. I wasn't really sure if that was what I was feeling. Fortunately, hubby was home so I asked him to feel. He did and then said "Call the doctor.". That day I was able to get in. The Nurse Practitioner (NP) asked me why at 43 I have yet to get a mammogram. My reply was, "There's no family history, I do self exams and I thought I had to get a mammogram when I was at least 45 or 50.". Apparently this doesn't matter anymore. You can have no family history, self exams are helpful and women need to start getting mammograms starting at 40 and then every year thereafter. Oops! My bad! The NP performed a breast exam on me with a worried expression. She said she was concerned and I needed to have a mammogram and ultrasound. The imaging facility will call me to schedule. I can see the worry on my hubby's face. I said "Honey, don't worry. I am ok. It is probably just a cyst or collection of fibrous tissue that the beagles irritated. It will be ok.". At that point I'm not sure if I was trying to comfort him or feed my amazing sense of denial. 2 birds with 1 stone I suppose.</span></li>
<li><span style="font-family: inherit;">I go home and 15 minutes later I actually received a call from the imaging facility. I was impressed. Then I wasn't "We don't have any appointments until May 29th." WTF!?!? You can't get me in for more than 2 weeks? The lady told me I could call around to see if I can get in sooner. I called a hospital near us. They were scheduling in July! Finally after several calls I found on that could get me in on the 21st. I'll take it.</span></li>
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Now hold up...all the tv, internet, radio, etc... on the importance of early detection of breast cancer but with a lump I can't get a mammogram for more than 2 weeks to a month?? WTF! I am so angered by that! You expect me to sit here for a month, my hubby sit here for a month not knowing what is in my breast, thinking the worst because that's what we all do <b>BECAUSE</b> of the tv, internet, radio and etc... and you can't squeeze a person in? I just don't get it! If a man needed... I know I don't need to finish this sentence.<br />
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May 15th to the 21st</div>
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<li>Wore brave face, act like there's nothing wrong, minimized the seriousness of the situation, cracked jokes about if I were to have breast cancer and had a mastectomy then I could get new perky ones. Joked about the terrible South Park episode about breast cancer and at times simply try not to think about it. Oh and I realized for once in my life that I was using food for comfort. I absolutely need carbs!!!</li>
<li>One thing did surprise me. I did not want anyone to know. Not my mom, best friend, my kids, in-laws. Not one person other than hubby. I didn't want them to worry needlessly if it turned out to be nothing. I know how they all worry. My daughter would be a mess because she takes everything to heart. My bestie has a chronic illness of her own and stress and anxiety makes it worse. My mom, I know how she worries because I am my mother's daughter. I am adamant I do not want anyone to know. However, I did tell Hubby if he needed to he could tell his bestie because I know it wouldn't get back to my family and friends. I know how Hubby is. Sometimes he needs to talk it out with someone. And that's ok. I get it. </li>
<li>I did end up telling my bestie. I know if I were her, I would be pissed if she didn't tell me. She has been great. She took it well. From appearances anyways. Because I know she worries just like me. Her and Hubby then talked me into telling my mom. I did but I not until after my mammogram and ultrasound. She wasn't mad but it kills me that I made her worry. Ultimately, I did feel better telling them but felt incredibly guilty to put them through all that worry. </li>
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May 21st The Mammogram and Ultrasound</div>
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<li>The technician was a wonderful, comforting lady. As I stood there in my lovely robe, she prepared the machine and chatted about the recent recommendations for not teaching young women about self breast exams. She and I were totally on the same page. It needs to be taught. Nevertheless, it was time for my mammogram. You have to stand in front of this contraption as the technician places your breast on this plastic clamp-like device. You then have to contort yourself by keeping your "hips straight to make the nipple straight", straighten out your right and left arms and touch the back of the machine like you are hugging it but have your arms relaxed. Move right shoulder in and still keeping your hips straight and then bend your right knee. At this point I said to the technician that "A man invented this!". She laughed. Probably not the first time she heard this. She then began to press down the plastic parts to squeeze my breast and make sure everything was perfect. Time to hold my breath and take the pics. Honestly, it wasn't that bad. Just awkward trying to balance everything. Especially when you have balance issues. When it was over, the technician showed me the images. It was really neat. Of course I forgot to take a pic to share so here is one I found on Google...</li>
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<li>Ultrasound was a breeze. No pain. You just lay there while another technician places warm jelly on your breast and moves the ultrasound thingy (technical term) across to take pictures. And of course I didn't get a pic of that one either. I know, I'm slacking! </li>
<li>Afterwards, I had to wait for the radiologist to come in and discuss what she sees. Using my great skills of denial, I told myself that it will come back as a cyst or simple fibrous tissue. NOPE! She came back and said she recommends a biopsy because it looks suspicious. Fan-frickin-tastic! </li>
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May 24th -- The Biopsy</div>
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<li>Nerves are on edge but still holding it together. First I had an ultrasound to see exactly where the lump is located. Tech marked my breast with an X for the Radiologist. The tech spoke in a sweet, compassionate voice when she explained what was about to happen. It made me feel at ease. The radiologist arrives and I must say she also had a very sweet and compassionate voice. It was truly evident that they both really care about their job and their patients. Radiologist numbed the area. Oh get this, I didn't have the normal bee sting like feeling like I do at the dentist or with stitches. Just pressure. I actually thought something was wrong. So I spoke up. (Imagine that) Apparently there is a "buffer" that docs can add to the lidocaine (Novacaine) injection that removes the sting. The radiologist stated "I've been doing this a long time and I know a few tricks.". Yay for me! The radiologist informed me that I will be hearing a loud click and she will tell me before she does it so it doesn't startle me. Here is a pic of the "needle" she used...</li>
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<li>I chose this pic because 1. It's funny to me (I'll stab a bitch) 2. It's exactly what it looks like. Kinda scary but really it wasn't. Radiologist and tech prep my left breast and I had to lay flat and place my left arm behind my head. I think this was the hardest part. I hate laying on my back because of pain. I hate having my arm raised behind my head because of pain. Radiologist took 5 pieces of the suspected tissue with the assistance of ultrasound. There was some bleeding but it was minimal. After about 10 minutes the procedure was complete and steri-strips placed. Now I had to have 2 mammogram pics done because when a biopsy is done, they place a tiny titanium marker on the lump. This signifies that the lump has been biopsied. It will show up on an x-ray, mammogram or ultrasound. It will NOT set off a metal detector. The mammogram was quick and not as much pressure placed like during a normal one. Just checking to see if the titanium is in the correct spot. Now it's time to sit and wait until the 29th for results. Of course this was done on a Friday of a holiday weekend. I know how to pick my appointment dates!</li>
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May 25-29th</div>
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<li>Sore, swollen and bruised. Wear your bra the first day. I hate wearing bras but it does help with the swelling. Ice packs are important for the first day. Best choice is a bag of frozen peas. Frozen green beans work just as well. At bedtime I like to lay on my left side. So I placed my clay cold pack on the bed and had my breast laying on top of it. </li>
<li>Second day, the swelling has gone down, bruising increased and it's sore. But nothing out of the ordinary. The hardest part for me was trying to keep the beagles from running across my chest as they like to do. They have no concept of boundaries. </li>
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<li> All the other days, not much to report. Still sore, bruised and beagles are making it challenging. </li>
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May 29th -- The Results</div>
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<li> Not in yet</li>
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May 30th — The Results</div>
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<li>Still nothing and I’m frustrated! I get that I had the biopsy on a Friday. I get that it is a holiday weekend and more than likely the pathology lab will be closed the following Monday. I get that Ohio had 14 confirmed tornadoes (no joke, we did) and most places don’t have power but COME ON! Ok, after reading what I just typed does I sound a bit selfish but I’m just scared. Scared of the unknown. Hubby hasn’t been sleeping. Bestie is worried. Mom has been quiet. And of course I feel guilty for making them worry too. </li>
<li>Decided this was BS so I called the breast center to inquire about my results. The lady said she faxed the results right now <strong>AND</strong> the report has been ready for <span style="font-weight: bold; text-decoration: underline;">DAYS!!</span> Seriously "ready for days? UGGGG!! </li>
<li>Few hours later...</li>
<li>So, spoke with my doc and I do NOT have breast cancer!!!! I have a <a href="https://www.mayoclinic.org/diseases-conditions/fibroadenoma/symptoms-causes/syc-20352752" target="_blank">Fibroadenoma</a>. A common benign tumor that is common for women. Click on the link for more information. </li>
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So what now?</div>
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<li>I had already decided if it were to come back as benign, I would have the lump removed. I don't want to feel a lump in my breast, I don't want to worry if it is changing into something (which more than likely it wouldn't) and more importantly it causes tenderness and burning pain. I already have enough pain going on and if I can't alleviate some, I'm all for it. It's a simple outpatient procedure. </li>
<li>I also had already decided if it were to come back as cancer, I would have a mastectomy. I had no hesitation about it. Take them. I can get new ones. Most insurances will cover reconstruction after mastectomy. I could have new perky ones!</li>
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Little info...</div>
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<ul>
<li><a href="https://my.clevelandclinic.org/health/articles/6270-benign-breast-disease" target="_blank">80% of lumps are BENIGN</a></li>
<li><a href="http://www.breastcancerdeadline2020.org/breast-cancer-information/myths-and-truths/myth-8-most-women-with-bc-have-family-history.html" target="_blank">There does NOT have to be a family history for you to develop breast cancer</a></li>
<li><a href="https://ww5.komen.org/BreastCancer/ChancesForSurvivalBasedOnCancerStage.html" target="_blank">If found early enough, breast cancer has almost 100% survival rate for 5 years. Pretty impressive. Even at Stage 2 it's 90%-98%.</a></li>
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All the worry, all the what-ifs, all the sleepless nights and all the devoured carbs in the past 2 weeks was for a benign tumor. That's cool, I'm good with it! It's important that all lumps to be checked out. Scary? Hell yes! But, I made it through and positively know that I do not have breast cancer. You will make it through it too.<br />
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Hugs!!<br />
Jenn<br />
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Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com0tag:blogger.com,1999:blog-6809950003394392848.post-81359141039757561022019-02-20T18:44:00.002-05:002019-02-20T18:49:38.011-05:00Influenza A...how I loathe thee!According to <a href="https://www.webmd.com/cold-and-flu/what-is-flu#1" target="_blank">webmd</a>, “Influenza, commonly known as the “flu”, is an extremely contagious respiratory illness caused by influenza A or B viruses.”. “The flu virus attacks the body by spreading through the upper and/or lower respiratory tract.” How true that is! Very, very contagious. Hubby had it and the very next morning, I had symptoms. And naturally, I told him I blamed him and I didn’t like him anymore! We both tested positive for Influenza A.<br />
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Symptoms are:<br />
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<li>Coughing </li>
<li>Sneezing</li>
<li>Sore Throat</li>
<li>Headache</li>
<li>Muscle Aches</li>
<li>Fatigue</li>
<li>Fever and chills</li>
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Sounds kinda basic doesn't it? Well, let me tell you there is nothing basic about the symptoms listed above! The cough, OMG! The cough was so congested, painful and felt like my lungs were on fire. Thick, nasty, yellow mucus that would fight you from bringing it up. At one point, I was choking and had to have hubby pound on my back. I had small broken blood vessels in my eyes, on my face and in my scalp. In turn felt like a million little brusies. When I would cough, the burning pain throughout my chest and almost electric shock like. I hated to cough and tried to avoid it as best I could but that was a losing battle. On top of it all, it left me very short of breath with very minimal exertion. Like, getting up and walking to the bathroom like I smoked 10 packs a day. I had to sleep in my recliner for a few nights because I couldn't lay down. And of course, I couldn't sleep alone in my recliner without the beagles. </div>
My throat was so raw. I would have swore I just drank acid. That burning felt like it was connected to my lungs. I could not get enough cold drinks, ice cream or ice. Ice cream I didn't mind so much.<br />
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Fatigue, muscle aches and headache was more exaggerated than what I normally have. That just felt like a flair. The fever and chills on the other hand, I knew I was sick when I was under 3 blankets with sweatshirt, long pants and socks. I am ALWAYS hot! Then once the ibuprofen kicked in I was sweating like mad. </div>
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Here it is 2 weeks after the fact and the pain in my throat and lungs are gone. My endurance is better, not 100%, but getting there. The cough is flemy but nothing like it was before. I can see how people can die from the flu. The pain, choking, it developing into pneumonia, how easy you could become dehydrated and malnurished. I'm pretty sure having Fibro really made the symptoms worse. Cuz, why wouldn't it. Fibro is spiteful that way!</div>
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You may be wondering why I didn't get a flu shot. Well, I was advised from my doctor that since we don't know exactly what autoimmune/demylenating disease I have that the flu shot can make things worse. So lucky me! However, if you are able to get the flu shot, <b>GET IT</b>! <b>GET IT NOW</b>! Insurance pays for them and some pharmacy has them for a reasonable cost. </div>
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Hugs!!</div>
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Jenn</div>
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Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com0tag:blogger.com,1999:blog-6809950003394392848.post-55509791935601362342018-12-03T23:28:00.002-05:002018-12-03T23:28:51.629-05:00Medical marijuana patient registry in Ohio is up!Today, Ohio State Board of Pharmacy activated the patient and caregiver registry for medical marijuana! I am so happy that this day has finally come. If you have already been seen by a certified physician and have been approved Contact that provider’s office and asked them if they have registered you. Now you might wanna give them a few days considering the registry has literally just opened. I am sure they have many patients to enter into the database so it’s gonna take some time. Ohio Marijuana Card, the place that I went for my recommendation, they told me that I should receive an email once I am in the database from the Ohio State Board of Pharmacy. And you know I’ll be in my email box constantly for the next week!<br />
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This <a href="https://medicalmarijuana.ohio.gov/patients-caregivers" target="_blank">link</a> will send you to Ohio’s webpage for medical marijuana. This gives you all kinds of information and rules that you will need to know once you are a card this link will send you to Ohio’s webpage for medical marijuana. This gives you all kinds of information and rules that you will need to know once you are a card holder.<br />
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Just a reminder the cost of a patient medical marijuana card is $50 for the year. The cost for the caregiver card, which I think is a terrific idea, is $25 for a year. </div>
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I will keep you posted when I receive my card and definitely my first trip to the dispensary. </div>
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Hugs!!</div>
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Jenn</div>
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P.S. If the format of this post is crazy, I apologize. It’s late, I’m in bed and on my iPad. I was not about getting up for my laptop. Also, I hate not adding any memes or pics so here’s pup!</div>
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Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com0tag:blogger.com,1999:blog-6809950003394392848.post-72982595013221512812018-11-29T17:17:00.001-05:002018-11-29T17:23:35.997-05:00Check out Jenni's Guts<div class="separator" style="clear: both; text-align: left;">
*Again, I am in no way, shape or form getting paid for or any kind of merch for promoting this blog. This is my cousin Jenni's blog. I just thought the more information I share with you, the better we all will be. Even though you may not have Crohn's, her life is just like ours, neverending crap (no pun intended) that makes you feel miserable and think you are crazy.</div>
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If you or someone you know has <a href="https://www.mayoclinic.org/diseases-conditions/crohns-disease/symptoms-causes/syc-20353304" target="_blank">Crohn's Disease</a> along with Fibro, check out this terrific blog, <a href="http://jennisguts.blogspot.com/" target="_blank">Jenni's Guts</a>. Like I said above, you may not have Crohn's Disease but you can totally relate to her struggles. Her posts are down to earth and to the point. She, like me, does not sugar coat when she writes. Check her out! Oh yeah, she was also nominated for...</div>
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Click the links highlighted to check it out!</div>
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<br />Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com0tag:blogger.com,1999:blog-6809950003394392848.post-60722279765543534982018-11-27T15:51:00.000-05:002018-11-27T16:01:12.041-05:00My trip to the medical marijuana recommendation physician...<div dir="ltr" style="line-height: 1.38; margin-bottom: 0pt; margin-top: 0pt;">
<span style="font-size: 11pt; white-space: pre-wrap;"><span style="font-family: "georgia" , "times new roman" , serif;">First of all...</span></span></div>
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<span style="font-size: 11pt; white-space: pre-wrap;"><span style="font-family: "georgia" , "times new roman" , serif;">*I am in no way, shape or form being paid for, benefiting from or getting anything out of this post by <a href="https://www.ohiomarijuanacard.com/" target="_blank">Ohio Marijuana Card</a> . I am writing this to share my experience with you. They will probably not even be aware that I am writing this. </span></span></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><span style="margin-left: auto; margin-right: auto;"><a href="https://www.ohiomarijuanacard.com/" target="_blank"><span style="font-family: "georgia" , "times new roman" , serif;"><img border="0" data-original-height="353" data-original-width="600" height="188" src="https://2.bp.blogspot.com/-jkGs5enzm8Y/W_2jew8leRI/AAAAAAAAc9M/DnT_1XZDb8w-GS6pKTaPw-AvgtQRlElLgCLcBGAs/s320/ohio%2Bmarijuana%2Bcard.jpg" width="320" /></span></a></span></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><a href="https://www.ohiomarijuanacard.com/" target="_blank"><span style="color: black; font-family: "georgia" , "times new roman" , serif;">This pic is from Ohio Marijuana Card website. Click here to visit site.</span></a></td></tr>
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<span style="font-size: 11pt; white-space: pre-wrap;"><span style="font-family: "georgia" , "times new roman" , serif;">Quick background, in 2016 <a href="https://www.medicalmarijuana.ohio.gov/News?articleID=1" target="_blank">Ohio House Bill 523</a> was signed into law pertaining to the legalization of medical marijuana. And, us Ohioians, have painstakingly been waiting ever since. Ohio has been very slow implementing the program and even though HB523 timeline indicated that medical marijuana will be available September 2018, that did not happen. Go figure!</span></span></div>
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<span style="background-color: transparent; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;"><span style="font-family: "georgia" , "times new roman" , serif;">Here it is November 2018 and there is finally, light at the end of the tunnel. We should be able to purchase products by mid December or early January. Even though, Ohio Board of Pharmacy Portal for the card is not up yet, certified providers can now start to evaluate and forward their recommendation to the state. So beginning of this month I went to <a href="https://www.ohiomarijuanacard.com/" target="_blank">Ohio Marijuana Card</a> to be evaluated. </span></span></div>
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<span style="background-color: transparent; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;"><span style="font-family: "georgia" , "times new roman" , serif;">I honestly can’t remember how I found Ohio Marijuana Card. More than likely it was a Google search for certified providers. Anywhoo, making an appointment was easy. Just go onto their website, fill out their form and pick the date you want. (I do know at this point they are booking a month out. So be patient. You can't even buy products until end of December 2018 or early January 2019) </span></span></div>
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<span style="background-color: transparent; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;"><span style="font-family: "georgia" , "times new roman" , serif;">Few things you should know:</span></span></div>
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<li><span style="font-size: 11pt; font-variant-east-asian: normal; font-variant-numeric: normal; vertical-align: baseline; white-space: pre-wrap;"><span style="font-family: "georgia" , "times new roman" , serif;">You have to have at least <a href="https://medicalmarijuana.ohio.gov/patients-caregivers" target="_blank">1 of the 21 Qualifying Conditions</a> (click the link to see what conditions are approved at the time of this post.)</span></span></li>
<li><span style="font-family: "georgia" , "times new roman" , serif;">Take pertinent medical records with you. I have Fibromyalgia. So, I logged on to an online medical chart my physicians use and printed out visit summaries with the diagnosis listed as present conditions. I went as far back as 2012. I printed out MRI and CT Scans too. They show the problems with my cervical disc that have bone spurs too. That suggests that I have chronic and severe pain. But it was the diagnosis of Fibromyalgia that was really important. I also printed off my ridiculously long medication list. Obviously it shows pain meds, muscle relaxers, antidepression meds ya know all the crap you have to take when you have Fibro. </span></li>
<li><span style="font-size: 11pt; font-variant-east-asian: normal; font-variant-numeric: normal; vertical-align: baseline; white-space: pre-wrap;"><span style="font-family: "georgia" , "times new roman" , serif;">Take your ID and form of payment is either cash or credit/debit card. No checks or bitcoin. </span></span></li>
<li><span style="font-family: "georgia" , "times new roman" , serif;">The fee. Their fee is $280. This covers the evaluation, if approved, recommendation to the state, the submittal of paperwork to the state and the 3 follow ups that you have to have for the year in accordance to the law. I believe once the Ohio State Board of Pharmacy Portal opens, Ohio Marijuana Card will take the $50 marijuana card fee for the year and send it to the state (and $25 for you caregiver’s card). So you won’t have to wait like I have to right now because it’s not up yet. The total then would be $330-$355.</span></li>
<li><span style="font-family: "georgia" , "times new roman" , serif;"><b><u>NO INSURANCE WILL PAY FOR THIS EVALUATION OR FOR MARIJUANA PRODUCTS</u></b>. This is all out of your pocket. </span></li>
<li><span style="font-size: 11pt; font-variant-east-asian: normal; font-variant-numeric: normal; vertical-align: baseline; white-space: pre-wrap;"><span style="font-family: "georgia" , "times new roman" , serif;">Paying the above fee to Ohio Marijuana Card does NOT guarantee you will be recommended. </span></span></li>
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<span style="font-size: 11pt; white-space: pre-wrap;"><span style="font-family: "georgia" , "times new roman" , serif;">Ok now with all that being said, let me tell you about my visit. My appointment was at the Beavercreek location. Take note that there is NOT a sign posted by the road. However, there is a paper taped to the door. It took us a few minutes to find the office location. I thought about it and came to the conclusion that they might not want a big sign that says Ohio Marijuana Card because the fear would be some moron will think they have buckets of pot just laying around and try to rob the place. So I don’t blame them at all for not posting a “Come rob me sign”. There are 2 entrances. The front one, next to the barber shop. I made the mistake going in this way because there is a flight of stairs you have to walk down and I loathe stairs. My legs loathe stairs. But if you drive around back, you can walk right in, no stairs and there’s even a wheelchair ramp.</span></span><br />
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<tr><td class="tr-caption" style="text-align: center;">I never claimed to be a pro photographer!</td></tr>
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<span style="font-family: "georgia" , "times new roman" , serif; font-size: 11pt; white-space: pre-wrap;"> The waiting room was very clean and quiet. With the exception of a pod cast playing which didn’t bother me one bit. It was not filled with drug crazed lunatics like some government officials think it would be. Just people like me, in pain and so badly want it to stop. </span><br />
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<a href="https://4.bp.blogspot.com/-jVAn0AyzqTY/W_2nLdC07iI/AAAAAAAAc9k/h5ai0K7iAe0sJOA6Q3fDaveV0i7BxE5IACLcBGAs/s1600/IMG_2504.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="color: black;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://4.bp.blogspot.com/-jVAn0AyzqTY/W_2nLdC07iI/AAAAAAAAc9k/h5ai0K7iAe0sJOA6Q3fDaveV0i7BxE5IACLcBGAs/s320/IMG_2504.JPG" width="240" /></span></a></div>
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<tr><td class="tr-caption" style="text-align: center;">This pic is from WHIO News interview. Watch it... <a href="https://www.whio.com/news/local/gem-city-gets-state-certified-medical-marijuana-doctor-office/X5drSucQF1dsHBKCsia4OI/" target="_blank">here</a>.</td></tr>
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<span style="font-family: "georgia" , "times new roman" , serif; font-size: 11pt; white-space: pre-wrap;">The doc called my name so my hubby and I proceeded to the exam room. Exam room was comfortable and clean. Typical looking exam room. I sat on the couch next to the doctor as we began to talk about my health conditions and fibro. He reviewed my records and test results. The doc and I did talk about different forms available and what he thought would be best for my symptoms. </span></div>
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<span style="font-family: "georgia" , "times new roman" , serif; font-size: 11pt; white-space: pre-wrap;">But guys, seriously, I am not going to go into detail about what he specifically asked me and what my answers were. I do </span><b style="font-family: Georgia, "Times New Roman", serif; font-size: 11pt; white-space: pre-wrap;"><u>NOT</u></b><span style="font-family: "georgia" , "times new roman" , serif; font-size: 11pt; white-space: pre-wrap;"> want people who fake Fibro just to get weed to learn from my post on what to say and not to say. Sorry posers, not gonna happen! You’ve already made it impossible for people like me, who are actually sick, to get disability because of you faking it and getting busted! But I will say I felt it was a very thorough and extensive evaluation. In the end, I was given the recommendation for medical marijuana. They will submit the paperwork and I will receive an email once the portal is up and running to obtain my card and of course pay the state their money. </span></div>
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<span style="background-color: transparent; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;"><span style="font-family: "georgia" , "times new roman" , serif;">Oh, I almost forgot, I asked the doc what made him become certified. He said (I’m paraphrasing mind you.) that he went to a conference and the study regarding other states who have legalized medical marijuana had 25% less opiate use. So he knew there was something to it. And, if opiates do not have to be prescribed, considering the epidemic right now, that would be a plus. (Again I am paraphrasing.)</span></span></div>
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<span style="background-color: transparent; font-size: 11pt; font-style: normal; font-variant: normal; font-weight: 400; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;"><span style="font-family: "georgia" , "times new roman" , serif;">All in all I did have a very good experience. I do recommend going there to obtain a recommedation for medical marijuana. Honestly, I was afraid that with medical marijuana recommendation places popping up (just like some pain clinics) that it could be real sketchy. But this place wasn’t like that at all. I was impressed of the cleanliness, ease to make an appointment and the thorough exam.</span></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><span style="font-size: 14.6667px; white-space: pre-wrap;">Keep an eye out either here or on my <a href="https://www.facebook.com/youarenotcrazy/" target="_blank">Facebook page</a> for updates on the release of Ohio Board of Pharmacy Portal and my first trip to buy medical marijuana.</span></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><span style="font-size: 14.6667px; white-space: pre-wrap;">Hugs!</span></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><span style="font-size: 14.6667px; white-space: pre-wrap;">Jenn</span></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><span style="font-size: 14.6667px; white-space: pre-wrap;">Don't have GMAIL and wanna leave a comment? Click...<a href="https://www.facebook.com/youarenotcrazy/posts/1984854224937927?__xts__[0]=68.ARAF7L39atAYgZ4v28PLOVo8_NiXRc3BJEZHq2rAysi-aYKpJixTWfLf1Yt8OFN9C6yqJbgfNzKNqFxZTbbNGAk5vURGvX3IdQD_5I9K-qjzhrEf39KanWLC3vedacE17hL8yO6t4QH5fhEnNlrqB6dentgc-k71SJUMqsebVJt-g2KVSMM9DX4KcxarfDD8RWp1PQdpdcf7DZ7KHYq23dda-bYchL9eVUR_wTLFh8RoaRKK7x5_Kr3JZsF9nQFMvvJYgEgKcQ035M_hySuH2s1Y14sfaVR5jau-f1QX1L0_0-zWlGcbANXKJn9waXnfECQkUWt7A9ixMzZHdpr3uu6I3A&__tn__=-R" target="_blank">here</a></span></span></div>
<br />Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com0tag:blogger.com,1999:blog-6809950003394392848.post-61825491649939142442018-08-05T13:51:00.000-04:002019-06-09T13:30:31.712-04:00Unexpected reaction to my dog because of pain...Update: On December 18, 2018, sadly Sophie let us know it was time to let her go. Her belly became distended, ulcers began to form on her hind end and she was in pain. We took her to the vet to have the symptoms checked out. However, Sophie laid down on the floor, which she never does, signaling to us that it was time. She went quietly with us there telling her we loved her, thanked her for protecting us and being such a great dog. She will be greatly missed. Love you Soph.<br />
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This is my dear sweet Sophie.<br />
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Here’s a little background. She is part shepherd and only God who knows what. She is at least 11 years old. We’ve had her for 10. She came into our life when our neighbor adopted one of her <b style="text-decoration: underline;">9</b> puppies. At that time I was working crazy hours and did not have time for a puppy. They mentioned that the mom was still available. So Hubby and I went “just to look”. (BTW going “just to look” <b>NEVER </b>applies when it comes to puppies and dogs. You always bring something home) Her previous owner dumped her and her 9 puppies off at the humane society. We were instantly drawn to her. So, of course we brought her home on a very snowy day in January.</div>
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Once we got her home, we did notice she was skittish. Her reactions to the slightest bang or raise in voice let us know that she may have been abused. But that was no longer going to happen in our home and it took a long time for her to trust new people. </div>
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Move forward 10 years later, we noticed within a few hours that her stomach became very bloated, had trouble standing up and short of breath. It was time for lunch and she sniffed her bowl then laid down. Girlfriend has <b>NEVER</b> missed a meal! Two of her fav times of the day is lunch and dinner! We moved the bowl next to her and she began eating a few pieces laying down but would get more short of breath. We figured with her age (11 is very old for a shepherd) that it was possibly time to let her go. </div>
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<a href="https://4.bp.blogspot.com/-6umya3RR_JA/W2c0unRahCI/AAAAAAAAcc8/3i_yGp2w8Ag4hcoqBJ3stQkbIPhtErFYgCKgBGAs/s1600/IMG_2092.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://4.bp.blogspot.com/-6umya3RR_JA/W2c0unRahCI/AAAAAAAAcc8/3i_yGp2w8Ag4hcoqBJ3stQkbIPhtErFYgCKgBGAs/s320/IMG_2092.JPG" width="240" /></a></div>
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Made a vet appointment that day and took her in.Vet was not sure what was going on. Thought maybe her liver was enlarged. Her belly was “tapped” to see if there was fluid present to swell her stomach. There was none which was a surprise to us. They decided to keep her all night to run blood work, x rays and to keep her comfortable with pain medications. We cried, prayed and cried some more. We thought for sure that her liver was failing just like the shepherd we had before. Next morning, vet called us and said all her lab work is perfect. Major organs were functioning great but truly don't know what is going on. Vet said is was some kind of pain response. She was prescribed Gabapentin twice a day. My mind kept telling me over and over that I do <b>NOT</b> want her to suffer. I do <b>NOT</b> want her in pain. It was almost an obsessive thought. Well, not "almost" it was and still is. I know when we went to get her and I mentioned it at least twice. The vet had to think that I just wanted to put her down. But that is the complete opposite, <b>IF</b> she wasn't suffering. I told hubby what kept playing in my mind. He said “Jenn, it makes sense. You are in pain every single day, every minute of the day. You know how miserable it can be and you don’t want that for Sophie.”. He was totally right! Why didn't I realize that? Is it because having chronic pain alters your own perspective? Is it because having chronic pain is my normal? I don't know but I am lucky to have hubby give me some insight.</div>
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As for my Sophie, she is hanging in there. She eats and drinks just fine. Still wagging her tail and will bring you a stuffed animal. Little night incontinence mostly because she is now afraid to go outside to potty at night. She takes her Gabapentin, also has an anti-inflammatory for the bad days. She will tell me when it's time. </div>
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Hugs!</div>
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Jenn</div>
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Wanna leave a comment but don't have GMAIL....Click <a href="https://www.facebook.com/youarenotcrazy/posts/1826947450728606" target="_blank">here</a>!</div>
Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com0tag:blogger.com,1999:blog-6809950003394392848.post-12446102593273819752018-03-29T17:08:00.003-04:002019-07-28T11:41:47.887-04:00UTI and Autonomic Dysfunction<div class="separator" style="clear: both; text-align: center;">
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Auto...what?!? <a href="https://www.medicalnewstoday.com/articles/76785.php">Autonomic Dysfunction (AD) or Dysautonomia</a> is a condition in which your involuntary nervous system overreacts to bodily stimuli. In other words, the things in your body that you cannot control (ie...blood pressure, heart rate, breathing etc...) goes all out of wack when there is the simplest of problems. This is commonly seen in people <a href="https://medlineplus.gov/diabetes.html">Diabetes</a>, <a href="https://www.mayoclinic.org/diseases-conditions/multiple-sclerosis/symptoms-causes/syc-20350269" target="_blank">Multiple Sclerosis</a>, <a href="https://www.mayoclinic.org/diseases-conditions/amyotrophic-lateral-sclerosis/symptoms-causes/syc-20354022" target="_blank">ALS or Lou Gehrig's Disease</a>, <a href="https://www.mayoclinic.org/diseases-conditions/guillain-barre-syndrome/symptoms-causes/syc-20362793" target="_blank">Guillian-Barre</a> and <a href="https://www.mayoclinic.org/diseases-conditions/parkinsons-disease/symptoms-causes/syc-20376055" target="_blank">Parkinson's</a>. Or no diagnosis at all. Also, medications can cause this to happen too. Triggers to AD can be: stress, dehydration, bladder distention, bowel alcohol consumption, tight clothing or simply just standing up.<br />
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<a href="https://www.blogger.com/blogger.g?blogID=6809950003394392848" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"></a>It was a Sunday and I woke up actually feeling refreshed and little pain. (Should have known it was too good to be true). Hubby and I enjoyed a nice lunch out without the kids and on our way home, I felt a twinge in my belly. I thought it was IBS (Irritable Bowel Syndrome) because I had just ate and like clock work, I have to go to the bathroom. Thought nothing of it. About a hour later, I felt that twinge again. Ok, have to potty. Then all of the sudden, I couldn't see straight, my head was pounding, my heart was feeling like it was going to come out of my chest, I was breathing very hard and had this pain in my neck. Thought maybe straining while using the toilet was the problem but I wasn't straining that bad. This passed. I made it out to my chair and I sat there and thought "That was weird.". 10 minutes later, twinge in belly and holy hell all the sensations happened again!! But stronger!! Went back to the bathroom (I really don't know why I thought it was IBS at this point.), sat back down and thought "Maybe I should call 911? Am I having a heart attack?". It subsided,went back to my chair, worried, and pretty sure I should have called 911 after that one. But no, my stubborn self waited 5 minutes later after the twinge and the sensations came back for the 3rd time. My blood pressure was 194/95 and heart rate was 102. I just wanted to lay down. I couldn't keep my eyes open. My speech was slurred. Words kept escaping me. At one point I remember thinking that I felt drugged. My mouth became instantly extremely dry. Like I haven't drank anything in a week dry. I knew something was very, very wrong. In the ambulance, the paramedic tried to start an IV. I am and always have been an easy stick. Not this time. My blood vessels clamped down and he told me I was dehydrated. How the hell was I dehydrated? I drink? Hell, I just came from lunch where I ate and drank??<br />
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Once I was at the hospital, I tried to explain what was going on. Twinge became abdominal pain from the paramedic and I was desperately trying to say it was not abdominal pain in the traditional sense but my brain was not cooperating with my mouth so it took a bit to let them know that is was a twinge. I was able to eventually get out that sometimes I will have a UTI and not know it and that it causes neurological symptoms. Doc ordered tests along with testing my urine. As soon as I seen my urine, I knew it was a UTI. So, that got my nursing brain working. The twinge was my bladder having a spasm. Every time my bladder would spasm, that would send my autonomic system into hysterics. Increased my blood pressure, heart rate, made me instantly dehydrated, clamped down all my blood vessels which made it almost impossible to draw blood for tests. Of course since my brain and my mouth would not work together, all I could get out was "Autonomic problem damn it!".</div>
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I seriously thought I was having a heart attack. I didn't know what was going on. Scared the hell out of my kids and hubby. Scared the hell out of me.<br />
Sure enough the urine analysis came back as did my white count. Positive for UTI and white count (indicates infection) was 23 (3.5-10.5 is normal). Friday before this happened I did have steroid epidural injection in my neck which helped increase that white count and fueled the infection.<br />
I was given the antibiotic <a href="https://www.webmd.com/drugs/2/drug-14492-8235/levaquin-oral/levofloxacin-oral/details" target="_blank">Levaquin</a>, <a href="https://www.webmd.com/drugs/2/drug-5661/pyridium-oral/details" target="_blank">Pyridium (Phenazopyridine or Azo Standard)</a> for bladder spams and <a href="https://www.webmd.com/drugs/2/drug-30/zofran-oral/details" target="_blank">Zofran</a> for nausea.<br />
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I feel much better now. I know I had to make some changes. Decreased Pepsi aka my crack, increased water. I really hate water so I bought the flavoring drops to add to it. I'm such a kid at heart and was so excited when I seen this...<br />
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No sugar, no calories and it's actually pretty good. Quick tip, don't follow the "1 squeeze per 8 oz of water". I have a 24 oz cup that I drink from. You only need 1 squeeze!<br />
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Since I don't know when I have a UTI because I don't have the normal symptoms, I bought UTI test strips for home. Once a week for now and then I'll start every other week. Just helps me to get a jump on it. You can get these from Wal-Mart fairly cheaply. Click... <a href="https://www.walmart.com/ip/EZ-Level-Urinary-Tract-Infection-UTI-Test-Strips-Leukocytes-And-Nitrite-50-Tests/578625729?wmlspartner=wlpa&selectedSellerId=8876&adid=22222222227084895931&wmlspartner=wmtlabs&wl0=&wl1=g&wl2=c&wl3=200356006015&wl4=pla-325685460928&wl5=9015828&wl6=&wl7=&wl8=&wl9=pla&wl10=115794581&wl11=online&wl12=578625729&wl13=&veh=sem" target="_blank">here</a> for more information on ordering test strips from Wal-Mart in the US.</div>
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Hugs!!</div>
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Jenn</div>
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Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com0tag:blogger.com,1999:blog-6809950003394392848.post-63935623032665026992017-09-22T14:54:00.000-04:002017-09-22T15:02:21.168-04:00How this little guy made a big difference in my life...<div class="separator" style="clear: both; text-align: center;">
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Having a chronic illness that takes a lot away from you. Independence, career, driving, sense of purpose. I felt that way. I know, I know... I'm still alive and someone else has it worse off than I do but I did feel that I had no purpose anymore. Until I met Connor. </div>
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Connor McGregor to be exact. Yes, hubby named him after the UFC fighter however, I call him Monkey because he climbs furniture like a spider monkey.I had no idea how he was going to change my life when he showed up.<br />
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We received a call in March, from a friend who runs a rescue, asking if we would want a 2-3 month old beagle. She rescued him from an "alleged" abusive home. Connor was underweight, skin was terribly dry because of improper nutrition and grooming and yet he was still the sweetest puppy. I've never been a fan of owning a puppy . Don't get me wrong, I love to cuddle them, play with them and leave them to their owner. I always preferred to adopt a dog who was at least 2 years old. That was when I was working 60 hours a week, kids were young, busy, busy busy. So, I never had the time nor the patience. After hearing Connor's story, Hubby and I talked it over and decided since our other 2 dogs are 14 and 11 years old, that maybe this was a good time to get another. We are such suckers! But really, could you say no to this sweet little face?</div>
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<tr><td class="tr-caption" style="text-align: center;">His camo hunting hat!</td></tr>
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We quickly noticed that when Connor was chewing on something he wasn't supposed to have, that we had to change our approach. We couldn't just jump up and yell "NO!". If we did , he would shudder down to the floor as if we were going to beat him. Broke my heart. Actually made me cry that first evening. How can someone be so mean and abuse this sweet little puppy? I will never understand.<br />
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<tr><td class="tr-caption" style="text-align: center;">Connor and his bff Buddy</td></tr>
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We had to really think about correction, potty training, feeding times
and get a routine down. With all this, it gave me a purpose again. I was able to teach and love him without completely exhausting myself. He has given me a great sense of accomplishment every time he sits, rolls over or gives me 5 on command. I have also started teaching him to get my cell phone off the table, pick up items that I have dropped and to get his harness out of the drawer. So we decided to make him a service dog. He goes everywhere with me. <br />
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Connor was meant to come into my life. I have never known a puppy that will stay in bed with you until noon because you don't feel well. During an exhaustive flare, he is calm, quiet and loving. I know he senses that I don't feel well. He has brought me so much joy that I didn't know that I was missing. I didn't realize the depression I was in. My family has even commented how much Connor has done for me. He gave me the sense of purpose again. This little, abused, starved for love puppy that needed me as much as I needed him.<br />
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Hugs!!<br />
Jenn<br />
Wanna leave a comment and don't have GMAIL...click <a href="https://www.facebook.com/youarenotcrazy/posts/1478026395620715" target="_blank">here</a>Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com2tag:blogger.com,1999:blog-6809950003394392848.post-26566960208252469652016-10-14T21:27:00.000-04:002016-10-14T21:32:00.712-04:00My Solu-Medrol Journey Day 3 and into Day 4...Yippee! Done with the IV doses! Sweating like mad. Have the lovely steroid glow going on. My mind still seems clearer than it was before. But the pain is really kicking my butt! What happened to the pain relief? I truly think that my joints don't know what to do now since the steroids are calming the inflammation down. AND apparently there is a nerve in my lower hips/sacroiliac joint that likes to shoot down into my "bejingo" (Fans of the show Scrubs will understand).<br />
I was a smidgen irritated when my family would speak to me. I think I held it in pretty good but OMG if one more person said one more word, I seriously thought I was going to lose it. It made my skin crawl. I held in screaming "SHUT UP and WHY ARE YOU BREATHING!". Happy to say that everyone survived and hubby worked VERY late. However I did have a nice night of sleep. Wasn't uninterrupted but it was still nice. Of course I did not wake up refreshed. Why would I even think that would happen?<br />
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I did realize today that all along I should have been taking Pepcid that my neuro prescribed to me with the taper dose. I have no idea why I forgot that I was supposed to take it during the IV therapy. Would have made a huge difference. IV dose does cause increase in stomach acid and I noticed that food tasted different to me too. Sis brought me home a yummy quesadilla with jalapenos. OMG it was delicious the first time I had it. But last night, I couldn't eat it. It was like the jalapenos were super infused, making my eyes pop out of my head. Cleared my sinuses though.<br />
Aside from the increased anxiety, heart palpations, flushed face and lil chest pain, I just don't know about other people who take IV Solu-Medrol get a bit of increased depression. I am not sure if it is an effect of the medication or if it gives you a feeling of false hope. What I mean is, Solu-Medrol makes you think that you are feeling "normal", how it should be. Spurt of energy, lessen pain (fingers crossed), mind is clearer and you have an urge to be active. It reminds me of what I once was. Working, cleaning, taking care of family, going on vacations. How much fun our family had together. I suppose Solu-Medrol is an evil double edge sword.<br />
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Hugs!<br />
Jenn<br />
Wanna leave a comment but don't have GMAIL? Click...<a href="https://www.facebook.com/youarenotcrazy/posts/1143260309097327" target="_blank">here</a>!<br />
<br />Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com0tag:blogger.com,1999:blog-6809950003394392848.post-83037104557861887682016-10-13T14:05:00.000-04:002016-10-13T14:10:56.124-04:00My Solu-Medrol Journey Day 2Day 2...<br />
Wide awake on 3 hours of sleep! Holy crap! Momma needs her sleep. The entire family needs Momma to sleep lol Comes along with the territory of taking IV Solu-Medrol.<br />
Obviously my mind is more alert and I have noticed that my thinking is clearer. Over the past 6 weeks I could not use my brain. Very, very simple thinking tasks were very difficult. Feels like the fog as slowly been lifted. My speech is still off at times. Wrong word chosen or slurs altogether. But whatever.<br />
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I do have more pain in my hips and knees. I think they have been inflamed for so long and now the steroids are easing them up they don't know how to react. And of course my stupid body's first defense is causing me pain. The feel of my headache is unusual for me. Just a constant ache that is just enough to make you feel miserable. Pain in both eyes, forehead and temples.<br />
Strangely enough, I began to wonder last night if I was getting a occurrence of Optic Neuritis. Pain was hitting that left eye. I had to stop and think... "No, can't be. Must just be the <a href="https://en.wikipedia.org/wiki/Uhthoff%27s_phenomenon" target="_blank">Uhthoff's</a>" because of lack of sleep, it was getting late and I was finally feeling sleepy.<br />
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I will say the Jolly Ranchers and seedless grapes have made a huge difference. I start eating a few grapes prior to the infusion then finish the rest during the infusion. Then suck on the Jolly Ranchers. But I will say it does NOT take the nasty taste in my mouth completely away but does make a difference. Plus I love grapes and Jolly Ranchers lol<br />
I am feeling a bit stronger with walking. I don't have that fear that I am just going to hit the floor. Endurance is still very low which is challenging. For the first time in 6 weeks I am mentally feeling better and know that my house is a disaster. I have to fight the urge to clean. Again, the fight between my mind thinks one thing and my body just laughs and says yeah right. Good thing I have teenagers to spout orders to lol.<br />
9 am next morning and going into day 3.<br />
I can say I did sleep last night. Woke a few times but fought to go back to sleep and it worked. I just need sleep. I do have lower back/hip pain that is shooting into my rectum. Fun stuff. Knees are still aching. Though on a good note, the headache is almost gone. I am hoping to nap today. Wish me luck!<br />
Hugs!!<br />
Jenn<br />
Wanna leave a comment but don't have GMAIL? Click....<a href="https://www.facebook.com/youarenotcrazy/posts/1141782595911765" target="_blank">here</a>!Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com0tag:blogger.com,1999:blog-6809950003394392848.post-1222933690775599622016-10-12T13:08:00.001-04:002016-10-13T12:22:07.434-04:00My Solu-Medrol Journey...Day 1Little backstory, for 6 weeks now I have had an awful flare. Unrelenting! Very worrisome. Fatigue was severe. Back to needing help to walk 15 feet to the bathroom. Started having trouble swallowing to the point of choking. I was so grateful that my hubby was home. It had gotten so severe that I was really scared. I could hardly move. And when I did the pain shot through my whole body. Even to move my extremities and they felt so waited down. But the difficulty swallowing really scared me. We went to the ER that night and I had explain to them what had been going on, the new symptoms I have been having and that I had had a UTI before and it causes neurologic worsening of symptoms. I explained that I don't have is the normal UTI symptoms. The burning upon urination and the urgency to go. I get the neurologic symptoms. The doc said sure we will check your year along with some other tests. They sent me home after they gave me a dose of IV steroids, shot of Toradol and a Higher taper dose of steroids. That was in mid August. As time went on I was not getting any better. Actually I started regressing more. Became very depressed. I really couldn't leave the house because it was just a chore to get myself dressed. I had to have help in order to take a shower. Finally after about a month I was able to see the MS specialist up in Cleveland. And at this point I was just down in the dumps and I just cried. I didn't know if this was a new plateau for me. My doctor was very understanding and I think she was also very concerned. I explained that I had gone to the ER and I told him about my previous UTIs and what it does to me. She looked up the labs and said "Well Jenn you may have had a UTI but we don't know so we are going to retest your urine.". Sure enough I did. My MRI that I had done the day before remain stable but it did show more lesions of what I had thought I had. But I still yet do not meet the full criteria to have the actual diagnosis of multiple sclerosis. However she did give me a generic I'm specified the myelinating disease and I really don't know what to do with that. Well I try to make a small backstory but if you've been reading my blog for a while you know that really isn't no small story. So let me explain about day one of the Solu-Medrol IV.<br />
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Solu-Medrol <span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);">1000mg IV x 3 days E</span><span style="font-family: "helvetica neue light" , , "helvetica" , "arial" , sans-serif;">clipse ball which is already calibrated to drip at the correct time. Mine will take a hour for each dose. A home care agency nurse will come to the house to administer. After it is completed I will start a taper dose of oral steroids and Pepcid to protect my stomach. </span></div>
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First, a few things to know. </div>
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1. Be sure you keep the doses refrigerated. Must be kept cold but you can remove one dose a few hours prior to arrival of your nurse so it won't infuse cold. </div>
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2. Hard candies and sweet/sour fruit!! Solumedrol has a nasty taste and doesn't go away. Jolly Ranchers, cold seedless grapes and mint gum help. Lemons/Lemon flavored candy or sour gummys work well too. (Sour Patch Kids are awesome!)</div>
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3. If you need an IV (Hep-Lock) placed in your arm, chose your non dominate side and do not place it at a bend. Like at the bend of your wrist or mid arm. </div>
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4. Drink plenty of cold water. Ice chips help too. </div>
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5. You will probably have an oral taper dose of steroids when you complete IV doses. You can't just "cold turkey" steroids. Your adrenal glands are not a fan!</div>
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Day 1: My home care nurse was rather interesting. Newer, greener nurse perhaps. Of course I neglected to tell her I was a nurse myself and there is a reason I do that. I NEVER tell a healthcare professional that I am a nurse at the first meeting. That way I can really see how they practice, what they know about disease processes and medications without them knowing that I know right from wrong. Easier for me to weed out the idiots. Sounds harsh but I have been going through this for so long and I'm done playing around. So, she kept referring to the medication as an "antibiotic". She also made 2 comments about the purpose of the steroids is because of a UTI I had. She looked totally perplexed when I said the word "demyelination" lol. Pretty much have her figured out. </div>
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Dose 1: The nastiest, most God awful taste in my mouth that I totally forgot about and forgot to take the dose ball out of fridge, so it infused cold. Oops. </div>
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Heart racing, bounding palpitations. Little chest pressure. </div>
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Sweating like I just ran a mile or for me after I take a shower lol</div>
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Feels like it's 100 degrees in this damn house!</div>
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Little spurt of energy but mainly anxiousness. (Maybe even a little manic too. lol)</div>
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Constant dull headache. </div>
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Weird because my hip and knee joints ache and feel like they are on fire. Must be from all the inflammation in the joints and the steroids are beginning working on them. </div>
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3 am--- Scent of skunk spray filled the air from a visit outside and my hubby waking me up. Mind now racing once again. Hence why I'm writing. </div>
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Head is still aching. Swapped out my bedtime diclofenac (Cataflam) for 4 OTC ibuprofen. However I must warn you that NSAIDs (nonsteroidal anti-inflammatories like ibuprofen, naproxen, diclofenac, etc..) and aspirin should really be avoided since it can irritate the lining of your stomach. As does the Solumedrol. Tylenol or acetaminophen is a better choice. </div>
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IV site is driving me nuts. I will have it replaced tomorrow since begging my hubby that I can show him how to place another one because it's really not a difficult task on my veins and I'm a good teacher totally failed. But whatever, I'll remember that! Oh, did I mention that sometimes Solumedrol makes you irrational? </div>
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I'm going to try and get some sleep now. Wait, why the hell is hubby laying so close to me? Oh boy, day 2 is going to be fun!</div>
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10 am- I still haven't slept. My head is just aching. My hips and knees are like they're on fire still. Whatever can't go to sleep now nurse will be here in 45 minutes for second dose.</div>
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Hugs!!</div>
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Jenn</div>
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Wanna leave a comment and don't have Gmail? Copy and paste this link. https://m.facebook.com/story.php?story_fbid=1140830829340275&id=505326549557376</div>
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*Please note the dosages I was prescribed by my Neuro may differ from your Neuro. Some docs prescribe differently. </div>
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*Also please note that I am not a doctor nor do I play one on tv. I'm just someone who is going through this for the 3rd time and I thought I would share some of my tricks and feelings. ALWAYS consult YOUR doctor if you have questions or concerns. </div>
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Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com0tag:blogger.com,1999:blog-6809950003394392848.post-41687061306820357082016-06-03T18:27:00.000-04:002016-06-03T18:33:39.165-04:00Planning a party with a chronic illness...Finally back!!! Sorry for being gone for so long but I have been busy! My baby boy just graduated from high school and I am ever so proud!<br />
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I have learned so much about planning a graduation party while having to deal with chronic fatigue, chronic pain, Fibro Fog, etc etc.. It was both trying and rewarding. <br />
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<li>Give yourself plenty of time to plan and organize:</li>
<ol>
<li>I am a HUGE procrastinator! I think it just goes with all the brain fog, knowing little things tick me off because I can't do things like I used to so it's better to just push it off and never knowing what day I will feel good or bad. Not to mention the indecisiveness. </li>
</ol>
<li>DON'T second guess yourself: </li>
<ol>
<li>I could have saved so much of my time if I would not have second (hell, 3rd or 4th) guessed myself. Just pick the damn date you want the party! Just pick the place! You will have other more important things to second guess yourself later!</li>
</ol>
<li>Get a notebook!</li>
<ol>
<li>This was just a fluke that I discovered. Buy a brand new (or steal one from your kids) notebook so you can keep everything, I mean EVERYTHING in it. Nothing flashy just a regular notebook. </li>
</ol>
<li>What to write in your notebook:</li>
<ol>
<li> Addresses:</li>
<ol>
<li>I don't have an "old school" address book or even a contact list with nothing more than phone numbers. So I had to gather all this info from my mom and from help of Facebook Messenger. I sen <u><b>individual</b></u> messages to family and friends for their addresses. I then would write them down in my notebook.This saved so much time when it came to writing thank you notes. All the addresses were there!</li>
</ol>
<li>Need and Have: <div class="separator" style="clear: both; text-align: center;">
<a href="https://4.bp.blogspot.com/-KoJxPLbGIoQ/V1IC379jIII/AAAAAAAAPCw/cB2pNjxKa7AZYFcYeb-aKy077OHHXUkugCLcB/s1600/IMG_2277.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://4.bp.blogspot.com/-KoJxPLbGIoQ/V1IC379jIII/AAAAAAAAPCw/cB2pNjxKa7AZYFcYeb-aKy077OHHXUkugCLcB/s320/IMG_2277.JPG" width="240" /></a></div>
</li>
<ol>
<li>Make one page for what you need to get.</li>
<li>Make one page for what you already have.</li>
<li>Be sure to keep it updated. Scribble, mark off, create new pages if it gets too messy. </li>
</ol>
<li>Who is bringing what?</li>
<ol>
<li>I do not like asking for help <u><b>BUT</b></u> when people ask if they can help, I jumped on it. Totally out of character of me I know but it was so greatly appreciated. Now, I am not saying ask the second cousin twice removed to bring all of the meat that is needed for sandwiches. I am saying if a sibling, friend, parent, grandparent asks if they can bring a dish, say "YES!". If they ask if you need help with setting up the decorations, say "YES!". My energy was limited as was my brain function lol</li>
</ol>
<li> Sketch: <table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://3.bp.blogspot.com/-Gnhjuu2OT6Y/V1ICeCwD5CI/AAAAAAAAPCo/KcwKNjh4Xtcw8cgg3Ce3_AB5UXnFPQlgwCLcB/s1600/IMG_2279.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://3.bp.blogspot.com/-Gnhjuu2OT6Y/V1ICeCwD5CI/AAAAAAAAPCo/KcwKNjh4Xtcw8cgg3Ce3_AB5UXnFPQlgwCLcB/s320/IMG_2279.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Never said I was Picasso!</td></tr>
</tbody></table>
</li>
<ol>
<li>We rented a shelter house for the party. My daughter and I drove over and decided how the food tables were going to be set up. Where the cake table was going to be. Where the present table was going to be. So, I made a sketch in my handy dandy notebook. </li>
<li>While doing this, this also helped with counting tables, how many table covers we would need. Along with how many centerpieces were needed too.</li>
</ol>
<li>List of what needs to be done a week before the party: <div class="separator" style="clear: both; text-align: center;">
<a href="https://1.bp.blogspot.com/-qFSxjMbu8WI/V1IDCHQ7TKI/AAAAAAAAPC4/6p657i0tTf4A61vNGCC5V74ijxhmwcoGwCLcB/s1600/IMG_2278.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://1.bp.blogspot.com/-qFSxjMbu8WI/V1IDCHQ7TKI/AAAAAAAAPC4/6p657i0tTf4A61vNGCC5V74ijxhmwcoGwCLcB/s320/IMG_2278.JPG" width="240" /></a></div>
</li>
<ol>
<li> This was a lifesaver. With everything going on and the Fibro Brain, this was great. I wrote specifically what I needed to do and what day. </li>
</ol>
<li>Write down who gave what gift:</li>
<ol>
<li>This was great! My son opened his gifts at home and he would say who from and what gift and I would write it down. This way it is just a few pages away from the addresses I already wrote down for the invitations. </li>
</ol>
</ol>
<li>Online shopping:</li>
<ol>
<li>I am now in love with Walmart online!! AND orders over $50 are shipped free to your home!! I found cheaper prices on Walmart compared to Amazon. However, I did order from both. Actually going to the store, walking around, being indecisive is just a waste of my precious energy. I knocked out a big portion of party decorations, utensils, paper plates, cups, fold up table and chairs and much more just by shopping online. </li>
</ol>
<li>You do not have plan every day:</li>
<ol>
<li>Seriously, you don't. There were days that I couldn't function because I was exhausted from all the planning and thinking. My fatigue is not only physical but also mental. Mental fatigue causes physical fatigue. So, if one day you plan, plan and plan, the next day you can't do a damn thing, no worries. It's ok...rest! </li>
</ol>
</ol>
I must admit, I was wondering to myself if I was becoming OCD (Obsessive Compulsive Disorder). That notebook went through many changes. Pages ripped out and rewritten. But it was all worth it.<br />
In the end, it was a cold but wonderful party. Planning gave me a sense of purpose, sense of accomplishment.<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://3.bp.blogspot.com/-XPMDASE91gY/V1ICL0F6qII/AAAAAAAAPCg/Kx9Jc2DlaC453crwkETJ9KmmJmOS79o-gCLcB/s1600/IMG_2412.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://3.bp.blogspot.com/-XPMDASE91gY/V1ICL0F6qII/AAAAAAAAPCg/Kx9Jc2DlaC453crwkETJ9KmmJmOS79o-gCLcB/s320/IMG_2412.JPG" width="240" /></a></div>
Hugs!!<br />
Jenn<br />
<br />
P.S. After everything was done and the party over I was completely exhausted. I was in so much pain by the end of the party I could barely get into the car to go home. I was in bed for almost a week from the pain and fatigue. It was worth it!<br />
<br />
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Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com1tag:blogger.com,1999:blog-6809950003394392848.post-43134029882755168392016-02-01T19:25:00.003-05:002016-02-01T19:31:08.595-05:00In true Fibro fog fashion....Just looking over my blog layout and noticed something missing from the banner....<br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="http://4.bp.blogspot.com/--gkwkdvBB-I/Vq_xlIN-2FI/AAAAAAAAOYA/s_Z1_2oNDqc/s1600/Blue%2Bwinter%2Bbanner.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="105" src="http://4.bp.blogspot.com/--gkwkdvBB-I/Vq_xlIN-2FI/AAAAAAAAOYA/s_Z1_2oNDqc/s400/Blue%2Bwinter%2Bbanner.png" width="400" /> </a></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
Do you know what is missing?<br />
<br />
<div style="text-align: center;">
<span style="font-size: large;"><b>FIBRO</b>!! </span></div>
<br />
Flippin "Fibro" is missing of my banner! The very first thing that you see on my blog and I totally forgot to add "Fibro"?! Seriously! Not only I forget what I'm saying, finishing a thought on a post (and thank God for spell checker) or walking thru the house for something, with 20 steps already in and I have no idea what I was going for, now I guess I can add omitting a diagnosis that I am often (very, very, very often) complaining about.<br />
<br />
How beautifully ironic is that!?!<br />
<br />
Touché Fibro, touché.<br />
<br />
<br />
Hugs!!<br />
Jenn<br />
<br />
Don't have GMAIL and wanna leave a comment? Facebook users click....<a href="https://www.facebook.com/youarenotcrazy/posts/960541307369229" target="_blank">here</a>!Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com0tag:blogger.com,1999:blog-6809950003394392848.post-71143949907054765902016-01-15T23:31:00.000-05:002016-01-15T23:35:01.732-05:006 days of steroids...My convo with hubby as I am on day 4 of Medrol Dose Pack (MethylPREDisolone)<br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="http://4.bp.blogspot.com/-5ygAUNX8bdM/Vpm2a6J4lrI/AAAAAAAANuk/uNG0Xvnx_Ak/s1600/medrol.jpe" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://4.bp.blogspot.com/-5ygAUNX8bdM/Vpm2a6J4lrI/AAAAAAAANuk/uNG0Xvnx_Ak/s1600/medrol.jpe" /></a></div>
<br />
Me: I feel so good right now. Very little pain. I mentally feel great. Why can't I feel like this all the<br />
time? Damn it! Why can't I feel this way all the time?!? I know once I stop them I am going to<br />
go back to what I was before.<br />
Hubby: (Looking at me compassionately) Just enjoy it Jenn.<br />
Me: I go thru this every time don't I?<br />
Hubby: Yes, babe.<br />
<br />
He was right! I do go thru the same emotions when I am taking steroids. I don't know why it has taken me so long to figure it out. AND I came to realized that each dose has a different effect on my emotions.<br />
First, let me tell you about this lovely flare. It has been a very long and drawn out one. It started simply with just not feeling right. It wasn't depression. It wasn't severe pain. I just noticed that the fatigue was starting to get worse. My endurance was getting very very short. After a few days, I stupidly attempted to clean up water that the broken washing machine decided to spew out all over the floor. As bending over, Sciatica went into over drive! My right leg, down to the calf was numb and the samurai sword like pain (because saying stabbing knife pain just doesn't give it justice) pierced my lower back, hips and down to my toes. Awful!!! And yet, I still was in denial about a flare. Few days later, still not bending over, not doing much at all, I noticed the Lupus Rash was starting to come out on my arm and the back of my head felt like it was on fire. Ok, fine! I am having a flare!! Time for steroids. Even though the pic below doesn't look as bad, it was the other symptoms that truly kicked my ass this time.<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="http://2.bp.blogspot.com/-gZ71Y0vNpkE/Vpm5D6xIYNI/AAAAAAAANuw/ipr9Qap4Ym8/s1600/12016%2Barm%2Bpic%2B3.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="http://2.bp.blogspot.com/-gZ71Y0vNpkE/Vpm5D6xIYNI/AAAAAAAANuw/ipr9Qap4Ym8/s320/12016%2Barm%2Bpic%2B3.png" width="210" /></a></div>
<br />
<br />
Day 1: I am so over feeling like crap. In pain, very fatigued, Lupus rash feels like a horrible sun. I am so happy that I have an "as needed" pack in my medicine cabinet!! I am going to feel so much better!! Love my steroids!!<br />
<br />
Day 2: Ok, so what happened to the spurt of energy you get with these sum' biotches? All I want to do is sleep!! Still feeling like crap and my rash is looking very angry!<br />
<br />
Day 3: Feeling better. Still fatigued but not that "gnawing not wanting to move to lift the tv remote" kinda of fatigue. Pain, is better and rash is pretty angry at me.<br />
<br />
Day 4: In the morning: Pain, better. Fatigue, better. Rash is clearing up. It doesn't feel like I just taken a Brillo pad across an open blister and now my mind is racing.<br />
<br />
In the evening: Very little to no pain. I WANT to do laundry?? There's that little spurt of energy I was looking for the other day! I feel so good! The best I have felt in 3 weeks! Damn, I feel good. This is not going to last. Why can't I feel this way all the time? This sucks!!! This is how I should feel every single day! I'm angry at this point! Why do I have to feel like crap all the time and then now that I am feeling good, it's not going to last? I am going to go back to the same, painful, fatigue ridden, bitchy self! I hate you steroids!<br />
<div class="separator" style="clear: both; text-align: center;">
</div>
<br />
Day 5: Also known as the "I want chicken wings or I am going to fight someone" dose. I am so frickin hungry! And, WE ARE OUT OF POTATO CHIPS!! UGH!!! However, my pain is minimal, which is so awesome! My mind is racing. For instance, I have about 12 different topics in my brain what to write about. I start off with one topic and ooooooooh.....squirrel!! Not to mention, I look at my dose pack and realize I only have one more day. Saddens me.<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="http://4.bp.blogspot.com/-lbwd-M9hsIU/VpnFW5yKZ_I/AAAAAAAANvM/Slu2u2QwhuA/s1600/61429d01dadcada205521e72692523ad.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="224" src="http://4.bp.blogspot.com/-lbwd-M9hsIU/VpnFW5yKZ_I/AAAAAAAANvM/Slu2u2QwhuA/s320/61429d01dadcada205521e72692523ad.jpg" width="320" /></a></div>
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Day 6: Still hungry. Still have minimal pain. Still getting spurts of energy for I have to tell myself not to over do it. Fatigue is less and endurance is more. Just finished the last dose and looked at the empty pack that I'm about to throw away and think, "Reality will be back soon. I will be back to the pain and fatigue that just runs me down mentally and physically. I hate this.".<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="http://4.bp.blogspot.com/-y3gufv-yTDk/VpnE5IWd-0I/AAAAAAAANvE/s6781vkvuHg/s1600/9711a05fc7aa1d327e96fba99feff8a3.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="291" src="http://4.bp.blogspot.com/-y3gufv-yTDk/VpnE5IWd-0I/AAAAAAAANvE/s6781vkvuHg/s320/9711a05fc7aa1d327e96fba99feff8a3.jpg" width="320" /></a></div>
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So, this is me on Medrol Dose Pack. The ups and downs. Feeling great yet disappointed that I can't feel like this forever. Interestingly enough, I never remember what I go thru when I am not taking it. It usually take 3-4 doses for me to remember. With the exception of the time I really, really, really wanted to fight some one, anyone and eat chicken wings. Like 2 baskets of chicken wings.<br />
<br />
Hugs!!<br />
Jenn<br />
<br />
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<br />Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com0tag:blogger.com,1999:blog-6809950003394392848.post-43650706401932864032016-01-05T19:56:00.002-05:002016-01-05T19:56:25.432-05:00Little late but....<br /><div class="separator" style="clear: both; text-align: center;">
<a href="http://2.bp.blogspot.com/--IrcZT-w1w8/VoxUgch7BYI/AAAAAAAANs4/7ecskHxykJ4/s1600/Happy-new-year-clipart-5.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="281" src="http://2.bp.blogspot.com/--IrcZT-w1w8/VoxUgch7BYI/AAAAAAAANs4/7ecskHxykJ4/s320/Happy-new-year-clipart-5.jpg" width="320" /></a></div>
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May the new year bring you less pain, less fatigue, less frustration and more happiness!!! Thank you for reading my blog and my New Year's resolution is to focus more on it!!<br />
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Hugs!!<br />
Jenn<br />
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<br />Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com0tag:blogger.com,1999:blog-6809950003394392848.post-6711883051101359512015-11-06T14:51:00.000-05:002015-11-06T14:54:29.095-05:00The Dirty Little Secret...You can "Google" all day long on signs and symptoms of your chronic illness but rarely the info will give you a real insight on how it will impact your life. The physical symptoms are easy to point out. Can't stand, sit or walk as long as you want because of pain and fatigue. Avoiding the sun at all costs because it causes the rashes to become enraged. Staying out of hot and cold temperatures because it causes increased fatigue or stiffening of joints which leads to more pain. I am talking about the emotional toll. I like to call it "The Dirty Little Secret" because we don't talk about it. We don't want to sound like we are "whiners", that we are dwelling on the negative thoughts or "not being grateful because there is someone out there who is worse off". (Which btw, when this is said, it's really annoying! You don't think I know that someone out there has it worse? Please don't say this to your loved one.)<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="http://2.bp.blogspot.com/-sJFwY1khR7g/Vj0CkTQXb3I/AAAAAAAANn4/PT0FjC6PZzo/s1600/hollowinside.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://2.bp.blogspot.com/-sJFwY1khR7g/Vj0CkTQXb3I/AAAAAAAANn4/PT0FjC6PZzo/s1600/hollowinside.jpg" /></a></div>
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Few examples of "The Dirty Little Secret":<br />
<br />
<ul>
<li>Having to swallow your pride. </li>
<li>Feeling ashamed. </li>
<li>Loss of independence. </li>
<li>Sense of having a purpose, self worth. </li>
<li>Strain on the family and my friendships. </li>
<li>Feelings of hopelessness.</li>
<li>Grieving for the "old" me. </li>
</ul>
<u><b><span style="font-size: large;">This is real, suffered in silence and it hurts.</span></b></u><br />
<br />
Even putting this out there is a bit uneasy for me. I don't want people to feel sorry for me. I don't want them to think that I am just a whiner. I don't want to hear "Just think positive!" (Yet another statement to avoid when talking to a person with chronic illness) That's not how it works. I can't just think happy thoughts and POOF!
All better! If that worked, I would be the happiest, most annoying person
in the world! I know that it's not my fault for being sick. I can't control what is happening to me. I don't want people to think that this is all I think about and I am dwelling on what I cannot control.<br />
<br />
<div class="separator" style="clear: both; text-align: center;">
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It is important to know that I do not sit here day after day and feeling sorry for myself because I don't But I will admit, some days are harder than others. I will also admit that I have days where I just want to cry and have...in silence, when hubby and kids are out of the house. Then put that smile on when they come home.<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-Z7KSIoKJ7Pk/Vj0D4-Duh4I/AAAAAAAANoI/68k8BPIG61E/s1600/1510758_720506904707963_5726564008523477586_n.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="http://4.bp.blogspot.com/-Z7KSIoKJ7Pk/Vj0D4-Duh4I/AAAAAAAANoI/68k8BPIG61E/s400/1510758_720506904707963_5726564008523477586_n.jpg" width="317" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">If you have trouble reading this, I will post on FB page.</td></tr>
</tbody></table>
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I just wanted to make "The Dirty Little Secret" to be known. With all the physical symptoms that we have to experience every day, we shouldn't have to suffer the emotional ones in silence.<br />
<br />
Hugs!!<br />
Jenn<br />
<br />
Wanna leave a comment but don't have GMAIL? Click....<a href="https://www.facebook.com/youarenotcrazy/posts/918169724939721" target="_blank">here</a>!<br />
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<br />Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com1tag:blogger.com,1999:blog-6809950003394392848.post-57500515391283315942015-10-06T20:13:00.000-04:002015-10-06T20:13:35.015-04:00Researchers....Let me do a "study" on you!**Before I start my rant, I just want to clarify that I am in no way advocating that a person with chronic pain/fatigue should NOT exercise.**<br />
<br />
According to Wikipedia, <a href="https://en.wikipedia.org/wiki/Fear-avoidance_model" target="_blank">Fear Avoidance</a> is basically that you develop chronic pain because you <b><u>AVOID</u></b> exercise because you <b><u>FEAR</u></b> the consequences. Well, no kidding! People with chronic pain and fatigue avoid exercise because they <b><u>DO</u></b> fear the consequences! I had recently read and article regarding this topic and it got me thinking...I want to preform a "study" on the researchers.<br />
Here is my plan:<br />
<ol>
<li>All researchers must run 5 miles without stopping before the placement of weights. (Please note, that a person with chronic fatigue or chronic pain feel like they just ran 5 miles and all they did was open their eyes in the morning)</li>
<li>All researchers will be given 10 lb weights that are to be placed on both arms, legs and feet. </li>
<li>All researchers will be given a 10 lb weight that is to be placed around the neck. </li>
<li>All researchers will be given 5 lb weights on each hand and 1 lb weight on EACH finger.</li>
<li>**Bonus 10 lb weights** These are to be place around the hips and <b><u>MUST</u></b> press against your sciatic nerve. </li>
<li>Once all weights are placed accordingly, each researcher will have tasks to perform, such as: vacuuming, laundry, washing dishes, making dinner and grocery shopping. You may not take the weights off at anytime. **Hint...Beware of bending over to pick up kids clothes off the floor. Sciatica will flare up**</li>
<li>Once all of the aforementioned above is completed, now you must "exercise". </li>
<ol>
<li>It is recommended that a 10 minute walk is good to start off on. Slowly work yourself up to 30 minutes. </li>
<li>Lifting...lift 1 to 3 lb weights (on top of your already 10 lbs on each arm and 5 lbs on each hand) Yea, that sounds good!</li>
</ol>
<li>After the exercises are completed, additional weights will be placed accordingly: 5 lbs to arms, hips, legs, feet, and neck for a total of 15 lbs to each area. 5 lbs will be added to hand for a total of 10 lbs and 1/2 lb to each finger for a total of 1.5 lbs. (This is an important step because thought the day with someone with chronic pain/fatigue, the heaviness increases.)</li>
<li>Are you exhausted yet? How's the pain? Because your day is not over yet...</li>
<li>Now you must complete a series of math, reading and comprehension questions. This is timed. Must do all calculations in your head. No calculators or "Googling" of any sort.</li>
<li>While still wearing the weights, there is a gathering tonight with 25 of your relatives and friends. This will take place is a small room with children running around screaming and loud chatter. After 20 minutes have past, you must maintain a conversation without forgetting your words, not losing your train of thought, saying the wrong word and without stammering. </li>
<li>You arrive "home". You now must get kids bathed, make their lunches for the next day, put the kids to bed, pick up clutter around the house and fold that last basket of laundry.</li>
<li>Time for shower. A shower chair will be allowed but you must not remove the weights. Don't forget to wash your hair. </li>
<li>Time to get dried off and dressed. Good luck!</li>
<li>Time to finally get in bed. Weights still intact and your bed tonight will consist of rocks in various places in the mattress. Every turn that you make in bed with the weights and rocks poking you, I doubt if you are not going to sleep well. You will wake up several times at night because of pain. Guess what, now you have to do it all over again tomorrow. </li>
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Is my study ridiculous? Perhaps. Far fetched? Not really. This is how I truly feel almost every day. I feel like I just ran 5 miles when I open my eyes in the morning. I feel like my extremities are weighted. I feel like more weights are placed as I vacuum the living room floor. I feel that sciatica pain. I have a terrible time with math or understanding a question, making a decision or wondering what I had just read. In a room with chatter and kids screaming makes my skin hurt. I, do often wonder, if there are rocks in my bed.<br />
I totally get that if you do absolutely nothing, don't move, don't try, yeah, your pain is going to worse. As will the depression. But when you have chronic pain and severe fatigue, it sucks! So, Fear avoidance, yeah I do believe I have that. Why wouldn't I? I don't want my pain to become severe. I don't want the heavy wave of fatigue hit me as if I am going to collapse. I don't want to pay for it for 3 days after the fact. Does this mean, since I have "Fear Avoidance" that I have given up? No, not at all. I still try and try again. I think we all do! I think people, like me, with chronic pain and fatigue, we fight. We have to!!<br />
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Hugs!!<br />
Jenn<br />
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Oh and to my make-believe researchers: After completing the study and you still don't get the pain, fatigue, heaviness, the fight that chronic pain and fatigue people like me go through every single day...Well then, I have one more task for you to complete...poke yourself in the eye. Don't "avoid" it!<br />
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<br />Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com0tag:blogger.com,1999:blog-6809950003394392848.post-88290323710410712332015-07-10T22:23:00.001-04:002015-07-10T22:27:33.475-04:00The fake smile...I think I have perfected "the fake smile". I really do. The other day we had a family get together and in the beginning I was feeling pretty good (Thank you Mr. Medrol Dose Pack). But later in the evening I caught myself giving "the fake smile". You know the smile I'm talking about. That smile that you flash when you don't want to explain how you are feeling because you are finally out of the house and you don't want to think about it. The smile that you flash because you just don't want to explain how miserable you feel because they really wouldn't understand it anyway. So, why bother?<br />
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99% of the time I flash that "fake smile" and give my standard answer "I'm doing pretty good." (I should copyright it) . That response can mean so many things. It could mean that in all actuality, my back is hurting from sitting on these hard chairs. My skin is starting to feel like an open blister that I just rubbed up against the table because of the many conversations that are taking place, kids running around and the music playing in the background just gets under my skin. Makes me hurt all over. My muscles ache and make my arms and legs feel like someone placed weights on them.<br />
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Usually half way though my meal I have to stop and just sit quietly to gain some energy up to finish. When asked "Is there something wrong with your food?". I reply "No, (enter fake smile here) just digesting and taking my time.". What it really means is I am having difficulty holding this 20 pound fork because the simple act of eating causes fatigue. That is why it takes me so long because I need rest breaks even for that. I have to take smaller bites because the more I eat the harder it is to swallow and I don't want to choke.<br />
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After sitting on a hard chair while slowly eating my dinner, all the conversations seem to collide together that makes it sound like a tornado siren. Kids are loud and running around the table but just being kids and the music playing in the background is just too much for me to take in. I sit there quietly with my fake smile and act as though I am paying attention to what the other person is telling me but by this time of the evening I probably don't even know what you are saying and I am just nodding and saying "Uh-Huh". For all I know, I could have just agreed to give you my first born.<br />
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At the end of the evening I am whipped but managed to flash that "fake smile" one last time. I had a family member come up and tell me "See Jenn, you got out of the house and all you had to do was just sit there.". Though I love this family member dearly and do not hold a grudge but "just sitting there" was <u><b>NOT</b></u> the only thing that I had to do in order to come. I had to plan before I left the house. Plan and time when I needed a shower and rest. Do my hair, rest. Get dressed, rest. Ride in the car, rest in the car. Sit and try to figure out what I want off the menu because I am so indecisive now it is ridiculous. During a conversation I am hoping like hell that I don't mess up my words or forget my train of thought so I don't look like an idiot. Especially don't want the look of "Oh you poor thing." when I am trying to think of a word. Again, when this happens, here comes the "fake smile" and even a fake giggle just to laugh it off. While I am "just sitting there" I have to tell myself to take deep breaths because of the tornado siren like conversations are all around me. It's making me hurt, ache. Eating, rest. Drinking, rest. Comprehending <b><u>ONE</u></b> conversation, rest. This is the point when I am sitting quietly and I tap my husband's leg and whisper "Let's go.". So, please don't ever think that all I did was "just sit there" because that is not true.<br />
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After all this being said, I actually taught myself something. Me not wanting to truthfully explain how I am feeling is not the only reason why I flash the "fake smile". It also because I don't want my loved ones to feel sad that I have a chronic illness. I do what I can, when I can.<br />
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Hugs!!!<br />
Jenn<br />
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Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com0tag:blogger.com,1999:blog-6809950003394392848.post-65237169523976866132015-03-24T21:32:00.000-04:002015-03-24T21:37:34.364-04:00Touché Lupus, Touché!Discoid Lupus is an annoying, painful, ugly disease. I normally have flares on my face, arms and neck. I'm used to having lesions there. Never thought the Lupus liked to keep things interesting. Gesh!<br />
I woke up the other morning, completely, utterly drained, joints aching and muscles all stiff. It felt as though my blanket weighed 50 pounds. My arms and legs were anchors. I, seriously, had a conversation with myself if I really wanted to waste the energy to lift the 100 pound remote control to change the tv station. To hell with it! It's not worth it. I'll just watch the Snuggie infomercial.<br />
At this point, I realize that I am having a flare. But usually when I have a flare, my Discoid rash is angry. There is nothing on my face. Nothing on my neck or arms. Hmm... Okay, whatever. So, I stayed in bed the entire day. I told my hubby "You know I don't feel good when I am not "farming" on my iPad.".<br />
The next day, the back of my head felt like it was on fire. I went to rub my forehead...OUCH! So, I go to the mirror and notice a few spots at the top of my forehead but my hairline seemed really, really <u><b>REALLY</b></u> much thinner. Seriously! My scalp now? And taking my hair! <br />
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<tr><td class="tr-caption" style="text-align: center;">Not the best pic but you can still see the lesions.</td></tr>
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UGH!!! Well, that confirms my suspicions, I'm definitely having a flare. It may not look like much but these small, raised, angry lesions burn and are quiet painful. Hurts to brush my hair. Rub my head. I am aggravated at this point. But then...I started thinking "Well, that explains my forehead but but why the hell does the back of my head feels like it was on fire?". Ohhh, this is why...<br />
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This is also new but totally explains the burning. (Hopefully that is the lighting of the pic and not gray hair because that would be the icing on the cake!) This flare is just so odd. I have never had it on my scalp or that far up my neck. The worsening of the fatigue is normal, feeling like crap is normal, joints aching so bad that I want to rip my arms and legs off is normal but these new areas are not. Medrol Dose Pack it is! Thank goodness my Rheumy gave me a Medrol Dose Pack to keep on hand in case of a flare. (My last flare, it took the Rheumy office 10 days to return my call. <a href="http://jenndsblog.blogspot.com/2014/08/seriously-doc-after-week-and-still-no.html" target="_blank">That's another story</a>.)<br />
So, Lupus, you have proven that you do have a mind of your own. You like to flare when I least expect it and you like to thrown in something new to keep me on my toes. As I said before, Touché!<br />
Hugs!<br />
Jenn<br />
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<br />Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com0tag:blogger.com,1999:blog-6809950003394392848.post-379271233200710742015-03-07T01:19:00.001-05:002015-03-07T01:23:30.102-05:00"It's noon and you're still sleeping?" "It's noon and you're still sleeping?" I hear this a lot! Sounds terrible right? Well, I suppose to someone who doesn't have a chronic pain and/or chronic fatigue it does. On one hand, I feel guilty for sleeping in so late but on the other hand...not really. I don't know why I feel guilty. I think maybe because it is a stigma that you shouldn't sleep until noon. I don't know but I do know that I can't work anymore, the kids are in school and hubby is at work. So, really, why do I need to wake up at 8am?<br />
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I have a terrible time going to sleep at night. My mind races. I can't get comfortable. I can't lay in one spot for too long because I get stiff and muscles start to spasm. When I actually do fall asleep, I am either waking up with every turn
because of pain, physically acting out my dreams and talking in my
sleep. Oh, and of course, the restless leg syndrome/periodic limb
movement disorder. Hmm...no wonder why I wake up feeling like I only had
a hour of sleep!<br />
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Yes, when I said "physically acting out my dreams" is really what I mean. I have fallen out of bed twice because I woke up acting out a dream. (Bump on my head and swelling to my elbow. Great, what's next? Broken hip!) My hubby will wake me up sometimes because he says that I am reaching my hand out to hand something to somebody or I am trying to reach for something. Weird, I know.<br />
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Talking in my sleep is great entertainment for my hubby. He tells me that I will just start talking. He also tells me that we have conversations in the middle of the night and I appear to be awake but never remember them the next day. I told him "Well, I will never be able to cheat on you because I would probably tell you in the middle of the night." <br />
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Back to what I was saying (damn fibro)...When I wake up in the morning (or afternoon) I
have to <u><b>make</b></u> myself to wake up. I can keep sleeping and sleeping well into late afternoon.
Recently, I have been making myself get up at 9 am but then by noon, I
am so exhausted, I have to take a nap. So, am I defeating the purpose? <br />
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I decided to try Melatonin about a month ago. I am not one for supplements or natural medicine (except for medicinal marijuana of course) but it does seem to help some. Along with my other bedtime medications, I don't know why I am not knocked out. All the medicines may be the reason why I can just keep sleeping or vice versa?? Who knows!<br />
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So yeah, I do sometimes, majority of the time, sleep until noon. Am I depressed and that is why, no. Do I like it, no. Does it make me feel unnecessary guilt? Of course it does! But I feel, I am not missing out on anything. No one is at home in the morning. It is quiet and peaceful. So what is the harm?<br />
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Hugs!!<br />
Jenn<br />
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<br />Jennhttp://www.blogger.com/profile/07370888896429822808noreply@blogger.com1tag:blogger.com,1999:blog-6809950003394392848.post-90676129334092608912015-02-02T23:15:00.000-05:002015-02-02T23:18:57.954-05:00Chronic illness and raising children...Chronic illness affects not only you but your kids too. I tend to forget that from time to time. I am not the same mom I was 2 years ago. Definitely, not the same mom, 5 years ago. I have 2 awesome teenagers. Sis is 15 (going on 20) and Jake is 17. They are really great kids. Good grades, goals set for college. Just overall really good kids. Since my chronic illness kicked into overdrive little over 2 years ago, they have had changes in their life as well. We were not exactly the typical family. I was the breadwinner and my hubby stayed home with the kids when they were young. We made more money that way. Now, I am the one who is home all the time and hubby is the one who works the crazy hours. That was a big change for the kids. When our roles switched, so did our finances. Hence some luxuries had to be cut out. Now, don't get me wrong, they do not go with out. Still have tv's, cell phones, internet, dresses for dances. It is just not the "Hey, let's go shopping just because it's Tuesday" kinda thing. But for being teenagers, they understand that we can't go out and spend $50 on Saturday and Sunday or justifying paying for cable TV when they stream movies off the internet anyways. They do not want for anything. Except for their mom to feel better. <br />
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They have had more responsibilities around the house. I can't clean like I used to. I can't mow or do yard work like I loved to do. They really don't complain much with the extra chores. In fact, when I am vacuuming or washing dishes and start to get fatigued, one of my kids will say "Mom, you are getting tired and your face is red. Go lay down and I will finish it.". Pretty awesome for a teenager to notice symptoms and volunteer to finish a chore.<br />
Ya know the days when the pain is terrible, the fatigue is kicking your ass or even when the depression and anxiety is up for no apparent reason... Ok, I will admit, sometimes I am not nice. Beeee-itch if you will. I know that I am hateful at times. I <b>REALLY </b>don't mean to be. Just some days, I can't handle the pain or the fatigue. I hate when I get like that. It is not their fault but I think they know, by now, that it is part of the illness. They have learned when to leave me be. I have even heard Sis say "Mom is not having a good day Jake, leave her alone. She is resting.". I <b>Hate</b> it!<br />
I know that Sis worries when she has a softball game if the weather is going to be cool enough for me to go. I try my damnedest to make it to every game. Crappy part is her games are usually in July. July is tricky in Ohio. It can be 100 degrees or it can be 65 degrees. This past year was awesome! You actually had to have a blanket at game because we were so cold in July. That's Ohio for you...50 degree evening at the ballpark in July! <br />
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I do know the most important aspect that has changed in my kids' life is them wondering if I am dying. My children have come to me with tears in their eyes asking me that very question. (This was during the time when I just stopped working and it took everything I had to walk 15 feet to the bathroom.) This broke my heart. It broke my heart to know that my kids were hurting and I was the cause of their pain. We sat and cried together. I explained that I can understand that they might think I was going to die. This is the first time that physically my symptoms got the best of me. I reassured them over and over but I know that they still are worried. <br />
Some days I feel like I am a bad mom. I feel so guilty for many things. Guilty because the "bad" pain days I snap at them. Guilty because I tend to isolate myself more . Guilty because I cannot do what I want to do and that affects them. Guilty because I am the mom and I am the one who should be doing the cooking, cleaning, working, going on vacations no matter what the temperature is outside. I feel guilty when I have to say "How much is it?" or "We only have X amount of money, find something a bit cheaper.". I know that money isn't everything and that it is a good thing for a teenager to learn but it still sucks and I feel guilty. <br />
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After all this being said, I understand that it's not just about me. My kids are living with chronic illness too. I am so very proud of my kids. I am impressed that they jump in and help. Find compassion and love. Having my back when I need it. (Sis demanding the doctor that she needs do something!) They find forgiveness when I am snappy, cranky and hateful. They are truly, truly amazing kids. They must have been raised right!!<br />
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Hugs!<br />
Jenn<br />
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